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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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03-10-2010, 11:29 PM | #1 | ||
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Searching for a facility that is familiar with SAPHO Syndrome. If anyone has been diagnosed with SAPHO please let me know where you are being treated.
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03-11-2010, 03:02 AM | #2 | |||
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My niece has SAPHO and is suffering quite badly from some of it's symptoms at the moment.
She sees specialist after specialist, each for a different aspect of the disease, but unfortunately we live in Australia so I doubt that we can help you. Let me know if you think of anything.
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