FAQ/Help |
Calendar |
Search |
Today's Posts |
|
General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
Reply |
|
Thread Tools | Display Modes |
05-19-2010, 12:21 PM | #1 | ||
|
|||
Member
|
Hello Everyone,
I am looking for some answers for a friend. Her husband has been dx'd with Fahr's Disease. Does anyone know anything about it or know anyone who specializes in it. Thanks, hopeful |
||
Reply With Quote |
05-20-2010, 08:46 PM | #2 | ||
|
|||
Member
|
go to pubmed, use "fahr's disease"...there were about 180 listings...good luck
|
||
Reply With Quote |
05-21-2010, 11:50 AM | #3 | ||
|
|||
Member
|
|
||
Reply With Quote |
06-11-2010, 10:45 AM | #4 | ||
|
|||
Junior Member
|
He woud see a neurologist. Fortunately this progresses very slowly. I have had it for about 15 years. Good luck
|
||
Reply With Quote |
07-12-2010, 05:54 AM | #5 | ||
|
|||
Member
|
Paula, do you have hypothyroidism as well? My wife had a CT done and it shows basal ganglionic calcifications, scared to death.
Last edited by Jim091866; 07-12-2010 at 05:56 AM. Reason: spelling |
||
Reply With Quote |
10-09-2010, 08:36 PM | #6 | ||
|
|||
Junior Member
|
no, I don't have hypothroidyism.
|
||
Reply With Quote |
10-10-2010, 02:28 AM | #7 | |||
|
||||
Senior Member
|
All I know is that it involves calcification of the basal ganglia in the crania. It can involve dementia, seizures, movement disorders, etc. That's about all I know about it. From what I understand it CAN be hereditary.
I also got this from PubMed. I hope this helps. God bless. Hugs, Lee
__________________
recovering alcoholic, sober since 7-29-93;severe depression; 2 open spinal surgeries; severe sciatica since 1986; epidurals; trigger points; myelograms; Rhizotomy; Racz procedure; spinal cord stimulator implant (and later removal); morphine pump trial (didn't work);now inoperable; lumpectomy; radiation; breast cancer survivor; heart attack; fibromyalgia; on disability. Often the test of courage is not to die, but to live.. .................................................. ...............Orestes |
|||
Reply With Quote |
01-12-2012, 11:51 AM | #8 | ||
|
|||
Junior Member
|
My son has it, too. He is enrolled in a study in the Rare and Undiagnosed Diseases program at NIH, and they're looking for more participants, so anyone with Fahr's should really contact them to benefit all of us. I also found a lot of information at the website of the National Organization for Rare Diseases -- look under "Familial Idiopathic Basal Ganglia Calcification."
|
||
Reply With Quote |
01-12-2012, 11:54 AM | #9 | |||
|
||||
Wisest Elder Ever
|
NIH links:
http://rarediseases.info.nih.gov/GAR...ification.aspx http://rarediseases.info.nih.gov/Res...aspx?PageID=31
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
|
|||
Reply With Quote |
11-04-2013, 07:10 PM | #10 | ||
|
|||
Newly Joined
|
I also have Fahr's. I'm 33 and have been experiencing symptoms for about 3 years. (Slight tremors in the hands, muscle stiffness, difficulty walking, twitches, involuntary curling of the toes, depression, some very minor short-term memory loss, dizziness, and feelings of numbness in the head)
So far it is progressing relatively slow. I was wondering how long before I start experiencing seizures and/or dementia, or does it vary from person to person? |
||
Reply With Quote |
Reply |
|
|
Similar Threads | ||||
Thread | Forum | |||
Graves Disease, connection with Celiacs disease and sore joints..Sorry so long... | New Member Introductions | |||
Lou Gehrig's Disease In Humans Genetically Linked To Dog Disease http://www.scienceda | ALS News & Research | |||
'Louise the Disease' ABOUT THE DISEASE Stafford County runner will compete in her l | ALS News & Research | |||
Highly Promising Dutch Research Into Alzheimer's Disease and Parkinson's Disease | Parkinson's Disease |