[Bobomb92]

hello all i am a 19 year old male who since around age 13/14 have had some frightening metnal and physcial prboblems. I really caN'T remember a single event from my past(including last week or two day ago) but it started with headaches my mom says. I played alot of sports and was very active and outgoing but i started to withdraw and feel weird. I remember my mind just became "sedated" my eyes got droopy(have been sinmce) "feeling of fluid draining and moving around in my head" and intense head pain. I think i had some kind of injury. But i just changed completey likie i couldn't talk with anyone now because thinking was so hard and i didn't know what to say. It was almost like woue now i had to strain my head for thoughts and then i would go back to being sedated. This all happened along with the head pain and everything else. ecspecially when or i was playing basketball where i could no longer see down the court and my head felt like it was going to explode and i couldn't think or remember the plays and felt like i was on 'autopilot" just doing the motions without thinking or reacting.

Also mental symptoms strated to develop. i remember feeling like i couldn't believe i was human or that people were my friends and i didn't know what to say to them and was worrying about what people thought of me so muchf because i felt stupid. Later i would develop "Ocd' like symptoms wherew i couldn't be around my own sister! I literally coulkdn't be near her or touch her or breath her air. I don't knoedw if i actually believed it though i blamed all the problems on her.

So anyway long story short i saw a ton of phychiatrists which was a horrible experiance. they put me on tons of medinces and i had 22 ect treatments which failed. i kept talking about the neurological meanwhile but i was so messed up i could barely talk lioke i was monosymballic and anxious as hell.

i've been through so much with both of these together and i swear to this day it's neurological. I have had mri's of thre brain, A ton of blood tests for every which way thing and even a PET scan.
I am

the interesting thing though is the head pain. it has been nonstop wince the beginning, my eyes are droopy, my back is hunched, my scalp is Tender1, my face flushes all the time on one side, cant turn my head it hurts so much, stabbing pain in the back of my head, and my head feels literally like there is no "fluid in it"

Last thing: i also developed POTS(found in 2008 m blood pressure is all over), and a connectivew tissue disorder

[Bobomb92]

OK so i couldn't edit my sloppy post. Anyway what i'm saying is i've been seeing a neurosurgeon and an expert on chronic fatigue syndrome for my POTS, and the NS found Cervical instability, Basilar invagination, and a retroflexed odontoid. My Chronic fatigue doc says that very well might be causing the POTS because of the pressure on my brainstem causing all sorts of autonomic disfunction. So the NS wants to do a suboccipital decompression and cervical fusion which i am getting done in two weeks. I have already had two surgeries from him for a tethered spinal cord and he put an LP shunt in for psuedotumor cerebri.

All i want to freaking know what the hell is causing me not to remember any particualar events or any experiances for my past. Feel any emotion and react to things, and slow thinking and "forced" thinking to the point where i cant have conversations with people and i feel reatarded for six years!!! It is NOT mental and ive been trying to distinguish that for six years. I know some kind of injury happened in head/neck spinal area and i had that head injury right in the back of my head as a kid....Can that pressure and basilar invagination really be causing the THINKING problem too? Or is it metabolic? or what...I have ehlors-danlos disease..but it's not the typical brain fog

THANK YOU!