I had a severe case of Guillain-Barre many years ago. Did they do a spinal tap on her, to determine if there was a high percentage of protein in the spinal fluid? Just by reading what is going on with her, it would not seam that she has G.B.S, but another neurological issue. I hope you find support right here, since like my G.B. S., there is not a seperate support group. Please get another opinion, from another doctor, being told that it is a "funny virus that attacks the brain" is NOT good enough! Find another doctor, one with some empathy.

--meaning that her cerebellum cannot coordinate her movements precisely, at least one possibility to investigate is celiac/gluten intolerance. There is an entity known as gluten ataxia:

https://sites.google.com/site/jccglu...e/glutenataxia

In fact, Looking through the entire Gluten File (put together by Neurotalk stalwart jcc and famous throughout the on-line world) might be a good idea:

https://sites.google.com/site/jccglutenfree/

It does not sound like GBS. Only say this based on personal experience.