HI Everyone:

I am the mother of a 10 year old little girl who was diagnosed with Neurocardiogenic Syncopy about 2 years ago. I would just like to get to know other people who have been diagnosed with this problem, or who have family who do. There do not seem to be a lot of support groups for this. She seems to be doing "OK" on the Florinef that she is on when she decides she is going to take it of her own free will. However, she is non compliant with the drinking of the gatorade and the salt issue. It's just that I am so frustrated with her sometimes when she won't comply. She has had some REALLY BAD spells and seizures and I just can't make her see that if she doesn't take her meds and drink, I am afraid that the next time she has a seizure or fainting spell she won't wake up !!!

Thanks for listening:
Marie Russell
Lexi's Mom