My husband has been found to have a lesion on the left temporal lobe of his brain and I was wondering if anyone out there has gone through this and if so what we might expect please.

Hey, Vickie.

A "lesion" can be anything--scar tissue, a cyst, a tumor, etc. It just means a "not-supposed-to-be-there" thing has been found. Once you find out more, you can check out the more specific forums here and get help. Push for answers, and good luck.


LIZARD

Hi Vickie Exactly what did the report say, do you know? Was the lesion found from an MRI with and without contrast?

I was in a serious car accident back in September of 1997,and a CT SCAN of my brain showed a lesion on my left temporal lobe,but it was found to be just a big bruise basically on that area of the brain.They sent my to have Neuro Psychometric testing done to see if there was any brain damage over it.And did an IQ test as well.I still tested in the qenious range in my IQ test,and the only real damage was that I lost my photographic memory.But the memory loss I was suffering at the time,came back after about 3 months,except for the photographic memory,that is permanent.And I have to deal with getting Migraines occasionally.It was scary,but it may not be too serious,just keep your fingers crossed,and I'll keep your husband in my prayers!Keep hope alive,and don't give up,practice memory exercises,if his memory is having problems,that's what helped bring mine back. I'm sorry you and your husband are having to go through this traumatic experience,I know,I've been there!

Yes, a lesion can be many things. I had a lesion on my right temporal lobe that turned out to be in fact a tumor. Has your husband had any symptoms to go along with this diagnosis of a lesion? Anything along the lines of headaches, seizures, vision changes etc? You can expect future MRI's and possibly CT scans. If it turns out to be a tumor and surgery may be an option then you can look forward to more testing such as neuropsychological testing, WADA, IQ (I can explain these in more detail if you'd like me to). I had my surgery 5.5 years ago and it was successful in removing the entire tumor. I also had refractory epilepsy as a result of the tumor (meaning medication did not control the seizures that I had as a result of the tumor) and I was seizure free for 4 years post op. I now only have an occasional seizure due to certain environmental conditions. I am once again on AED's (anti-epileptic drugs) to control constant migraines and seizures, which is working quite successfully I might add.
If you'd like to know more about the surgery let me know.
It's a frightening process to go through, but it can be a very enlightening one also. It brought me a lot closer to my family and really made me appreciate the little things in life.

I to just found that i have a lesion on the left temporal lobe. It is small so they are not sure what it is. I have been having weird symptoms for about two months now. I feel dizzy or lightheaded, trouble thinking and concentrating, shortness of breath, tightness in throat, numbness in my face and just generally do not feel good. I was wanting to know if there is anyone out there who has had this and can tell me what type of symptoms you had. They want to do another MRI in March but if the tumor hasn't grown then they don't want to do anything. I know I can't live like this. Please help if you can.

Hi Peni,

Lesion is kind of a vague term. I understand the symptoms described, and I'm not sure your symptoms are all related to the lesion itself. A lot of those symptoms may be relieved by anti-depressants and/or anti-anxiety medicines.

Living the way you are now stinks...true. Surgery just might not be the answer for you at this point. I would just like to warn you that surgery has drawbacks. The temporal lobe is highly involved in speech, memory, and emotions. Depending upon where the lesion is, inside the LTL, removal *could* have dramatic affects upon every area of your life. Or, the lesion may be in a relatively safe area. Doctors, therefore, take these factors into consideration when they're making a determination of what is best for YOU.

I've had my LTL resected to remove seizure focus (in my case, scarring caused by high fever). 3" of hippocampus and a thumb sized area of my anterior cingulate gyrus were removed. If you're interested in finding out more of my personal experience, send me a private message.

Best wishes!
Shez

I 2005 I was told I had hasimoto`s encephalopathy all over my brain. My symptoms were stroke like and emotional problems. When I say emotional problems my moods were mixed up. When I was supposed to be happy I was mad and so on. Sometimes I just got mad out of the blue. Or say things I did not mean or cursing when I don`t curse. For me this the worst part of having a brain lesion. Be patient with him he does not want this, I am sure. My prayer are with you.

My father in Law is in the same boat as you he had an mri scan for his hearing as he is partially deaf and was told they had found something on the brain he was sent to a neuroligist 3 months later and was told that it could be a tumour but might possibly be nothing the professor was great and explained what he could where this is on the brain there is not much they can do about it if it is cancerous he is a driver and has to inform dvla which he has done and has to go back to hospital in 1 year to see if this has grown so he now feels he is no furthur forward he got a report from his doctor to send to dvla and it says he has lesion left temporal lobe low grade glioma and also superior falcing lesion possible miningioma he didnt realise there was 2 things until he got this copy of letter from doctor that was sent from the neuroligist he now faces his possiblity of losing his licence foer a year until he goes back for another scan the only information we know about this is what iam looking up on computer which doesnt sound to good . Iam going to find out as much information and will post what i find incase it helpful to you.

Do you have a history of migraines? What other tests has your doctor ordered? I have discovered that the symptoms you are having, (I also have them), are linked to a lot of different diseases and disorders.