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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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05-05-2007, 12:35 AM | #1 | |||
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Just wondering if anyone here has an Arachnoid Cyst?
My Arachnoid Cyst, in the posterior fossa, was discovered 10 years ago, (with an MRI) after 2 years trying to find answers to my symptoms. It was operated on, and so far, hasn't regrown. Although we were sure it had, because the symptoms returned early last year. But an MRI didn't reveal any new growth. But now it seems I have Occipital Neuralgia, originating from the cyst operation, which damaged the Occipital nerves! Just my luck... ~Jaime~
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07-22-2007, 08:04 AM | #2 | ||
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What were your symptoms when you were diagnosed with the cyst. AFter 2 weeks of tremor/shaking symptoms they did an MRI on my brother and found a cyst in the back of his head (I dont know the exact location). The doctor states that these are benign and cant be causing the symptoms he is having. Searching we have read differently.
Thanks, Michelle |
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07-22-2007, 11:47 PM | #3 | |||
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Hi Michelle
My symptoms were mainly constant chronic headaches, dizziness and balance problems. First it was thought it was just middle ear problems and went through all the tests with an ENT specialist, but I was finally sent to a Neurosurgeon who sent me for an MRI that showed up the cyst. Mine had grown to a size where it was putting pressure on the brain and causing the symptoms. Some cause symptoms and some don't, depending on the size and location of the cyst. My Neuro took my symptoms seriously, I guess some doctors don't, unfortunately. I think his Doctor needs to investigate further. A Cyst is usually benign, but they can still cause problems if they grow too big. ~Jaime~
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07-23-2007, 07:10 AM | #4 | ||
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Thank you for your reply. Another neurologist that we consulted with (a family friend that lives 1000 miles away) said that they cause no symptoms as well. We still want to go and see another locally for a second opinion.
Thank you, Michelle |
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08-05-2007, 12:23 AM | #5 | ||
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Hi Jamie, Hi Michelle,
I was diagnosed with the Arachnoid Cyst, mine is specifically called a dandy walker, about 7 weeks ago. I had my surgery, shunt implant, two weeks ago. Oh what fun..... This all came about because one morning I woke up and had this strange electronic sounding echo in my right ear. Finally saw an ENT, he said I lost my low range hearing which caused the echo. He had me do an MRI where they found the cyst.. My symptoms were, my hearing, balance, which got wickedly worse after my hearing went, I also had hand tremors, but didn't really associate it with the cyst. It's been two weeks since I've had the shunt put in. My symptoms come and go. When I wake up in the morning I feel great, but as the day goes on, depending on how active I am, the symptoms come back. I really like my neurosurgeon. He was very up front with me. The way he explained it....I have had this all my life. For reasons unknown, it started to really affect me. All he promised me was that the surgery would keep my symptoms from getting worse. I may not get any better, but I could. My cyst was/is huge, 8cm x 6cm x 3.5cm. It really pushing my brain forward. He couldn't say for sure that by draining the cyst that my brain would shift back thus relieving the pressure it's putting on my nerves. It's only been two weeks, It could take several months for the brain to realize that it has some breathing room, so I'm still hopeful |
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08-06-2007, 03:54 AM | #6 | |||
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Hi Andy,
Wow, so strange to hear your story, and I can understand what you are talking about! My cyst was similar to yours, A Dandy-Walker variant Arachnoid Cyst in the Posteror Fossa. Maybe not quite as big as yours, but causing many symptoms, and it took nearly 2 years to get a diagnosis. Finally an MRI found the cyst. So glad to hear that you got the treatment you needed for your Cyst. I've heard stories where some people can't get a Neurosurgeon to take their symptoms seriously and operate. So glad you found a good Neurosurgeon. I didn't have a shunt put in, I had a cyst fenestration. I hope that the shunt works for you and there aren't any problems. Yes, it will take time for it to work, to relieve the symptoms, and the pain. If you have had some improvement in 2 weeks, then things will only get better! ~Jaime~
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07-23-2009, 09:41 PM | #7 | ||
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07-23-2009, 09:32 PM | #8 | ||
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08-02-2009, 04:18 PM | #9 | ||
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08-04-2009, 08:28 PM | #10 | |||
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My cyst was diagnosed by MRI in 1996, and I had surgery less than 3 months later. But I was lucky to find a great Neurosurgeon, who believed my symptoms were connected to, and caused by the cyst in the posterior fossa.
I think you need to get a second opinion, and maybe more opinions, until you find a neurosurgeon who believes you and will help. My experiences have been a lot different and I was able to find a neurosugeon who knows something about Arachnoid Cyst, and was willing to operate, but I live is Australia, and things are somewhat different regarding healthcare... ~Jaime~
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