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| General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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12-14-2007, 11:04 AM
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Junior Member
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Hello,
-just wanted to post this FYI. It's very difficult to raise awareness when we're not even mentioned on the NORD database (actually, I did find something under "Olivopontocerebellar Atrophy," which is another older term for SCA, which is still used here and there...): http://www.kumc.edu/gec/support/ataxia.html I copied this from the genetics link which is already posted here in the "Useful Information and Websites" thread. Thanks. P.S. Here's another good one, FYI: http://internaf.org/friends.html |
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Ataxia awareness
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