General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


advertisement
Reply
 
Thread Tools Display Modes
Old 09-20-2012, 11:25 AM #1
lucii lucii is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
lucii lucii is offline
New Member
 
Join Date: Sep 2012
Posts: 1
10 yr Member
Default Carotidynia

hi,

My name is Lucii I'm new to the forum. I'm 26 years old.

I've recently had a lot of problems with pain in the right hand side of face, jaw and neck often (but not always) accompanied with quite bad swelling to my neck. The first time this was happened I was admitted to hospital for 2 weeks with suspected mumps and meningitis - I got better and I thought that was the end of it... however this has happened very regularly, I'm now getting pain on an almost daily basis and swelling every couple of weeks. I'm usually pretty good with pain and I would never go to A&E unless absolutely necessary but this has left me in tears many times over the last few months, and 3 hospital admissions in the last 6 weeks.

I know it's bad to 'google' your symptoms but I'm really desperate. I've come across carotidynia and I think this may be what I have. Does anyone else have this? How are you treating it? More importantly - how do you cope?? I've tried a whole range of different medications opiates, anti inflammatories, neuropathic pain killers e.g gabapentin, but nothing seems to help. At the moment I am taking sumatriptyn and prednisolone and temazepam at night to help me sleep.

I would love to hear from anyone else who has this.

Many Thanks

Lucii
lucii is offline   Reply With QuoteReply With Quote

advertisement
Old 01-03-2014, 08:41 AM #2
Healthynut Healthynut is offline
New Member
 
Join Date: Jan 2014
Location: Carolinas
Posts: 5
10 yr Member
Healthynut Healthynut is offline
New Member
 
Join Date: Jan 2014
Location: Carolinas
Posts: 5
10 yr Member
Wink I'm cured!

Quote:
Originally Posted by lucii View Post
hi,

My name is Lucii I'm new to the forum. I'm 26 years old.

I've recently had a lot of problems with pain in the right hand side of face, jaw and neck often (but not always) accompanied with quite bad swelling to my neck. The first time this was happened I was admitted to hospital for 2 weeks with suspected mumps and meningitis - I got better and I thought that was the end of it... however this has happened very regularly, I'm now getting pain on an almost daily basis and swelling every couple of weeks. I'm usually pretty good with pain and I would never go to A&E unless absolutely necessary but this has left me in tears many times over the last few months, and 3 hospital admissions in the last 6 weeks.

I know it's bad to 'google' your symptoms but I'm really desperate. I've come across carotidynia and I think this may be what I have. Does anyone else have this? How are you treating it? More importantly - how do you cope?? I've tried a whole range of different medications opiates, anti inflammatories, neuropathic pain killers e.g gabapentin, but nothing seems to help. At the moment I am taking sumatriptyn and prednisolone and temazepam at night to help me sleep.

I would love to hear from anyone else who has this.

Many Thanks

Lucii
I was diagnosed with carotidynia several years ago. I had what felt like an impact wound on the left side of my neck. It came and went for months. It kept me awake at night or would wake me up repeatedly. I went to different doctors, and even went to a medical school library to research carotidynia. I was placed on prednisone, NSAIDs, and pain killers. Nothing worked. Then I went to a rheumatologist, who gave me a script for Flexeril. He said to take only half of one pill about a half hour before bed every night. It worked immediately! I took the Flexeril for about a week, and I have never had any real trouble from carotidynia again. On two occasions, I thought I was having a mild recurrence, but each time, a single half-dose of Flexeril warded off any relapse. A generic name for Flexeril is Cyclobenzaprine. I keep a current prescription on hand, but except for the two occasions I mentioned, I have never used it.

Who knows whether this would work for you, but it's worth talking with your doctor about it.

I will die before I ever take prednisone again. I thought my heart would beat itself to death, I couldn't sleep, I gained 30 pounds in a month and could not find enough food to suppress my insane appetite (I still haven't been able to lose the weight I gained); and my hips and legs ached (and I still have recurrences of aching hips). And prolonged use of NSAIDs and narcotic pain killers is not good for you.

I sure hope this helps -- or at least gives you hope that there is a solution out there.
Healthynut is offline   Reply With QuoteReply With Quote
Old 01-03-2014, 11:50 AM #3
mrsD's Avatar
mrsD mrsD is offline
Wisest Elder Ever
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb

I have to wonder if this neck pain is spasm generated? That is how Flexeril works.

One thing you can try for your neck to see if you can abandon the Flexeril is the new Morton Epsom Lotion. This is what I put on spasms (which I have alot of due to arthritis).

A pea sized glop of this wonderful new product will take a spasm away within 1/2 hr or less, and used every day on a problem area, you can prevent further ones.

This is new, and at WalMart and Walgreen's now locally or on Amazon online. It is not in all stores yet. WalMart's is the least expensive...at 5.98 for 8 oz which lasts a LONG time. I love this and have introduced it to many people here and most of them are quite happy with it.

http://www.amazon.com/Morton-Epsom-L.../dp/B008X365AU
you can see by the reviews on Amazon that NT is not the only place where people like this product!

You don't slather this on...the magnesium if overused may over-relax you and make you tired. I apply mine almost always at bedtime for a good sleep. This will also take down swelling and it has worked for my problematic ankle which swells up now and then. Most people in the US are low in magnesium containing foods and are running on 1/2 empty daily. This is an easy way to restore you and also help with muscular pain/swelling and spasms.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei

************************************

.
Weezie looking at petunias 8.25.2017


****************************
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
mrsD is offline   Reply With QuoteReply With Quote
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
chronic carotidynia stephen4101 General Health Conditions & Rare Disorders 33 07-13-2017 07:00 PM
Carotidynia ? newpen General Health Conditions & Rare Disorders 4 01-03-2014 08:50 AM
CAROTIDYNIA / TIA (Mini stroke) / High blood pressure / Beta blocker correlation? chelhollie General Health Conditions & Rare Disorders 0 05-31-2012 03:30 AM


All times are GMT -5. The time now is 06:43 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.