I got my results from the neuro doc for the clinical trials and they said, I am going to be referred to a movement neuro behavioral/psych doctor for Parkinson's disease. They saw my symptoms in person and agree with me I am experiencing something very unusual, but definitely could be parkinson's disease. I am getting worse I am only 20 I am a baby, and I am ailing so badly. So I don't I am very scared though.

As an update on here, I am more emotionally depressed now, because I want to be a vocalist, because I already know I can sing well. It gets me mad now that it's extremely difficult to open my mouth to formulate words for singing. I have proper technique, but my medical stuff makes talking difficult and singing impossible. The doctors don't know what I have they are more confused and they know it's definitely nuero in the movement disorder, but it's very different like dementia alzhiemers and parkinson's in one. It's a mix they know that from seeing me and what I shown them and described and so they don't know.

I don't remember much at all, I am just barely remembering bout this account and it's purpose my life turned upside down now. I want to recover and need medical attention immediately I don't have a way to contact anyone. I only have a computer. It's very difficult to remember anything I just woke up and now I am scared i don't recall being in this body to begin with.

Hi, I think that a good place to start would be to make a simple list of all your symptoms without including any backstory because you are going through so many things that it becomes too much for others to absorb. Keep it simple.

So for example...

Symptoms

-Nausea
-Vivid Hallucinations
-Tourettes

etc...

I'm being checked out now, it's developed even worse. I have a movement disorder, my MRI's are normal. I was told it's not my brain directly affecting it, but something is affecting my brain and body functions and the neuro specialist I have told me. I am awaiting my eeg results and my blood tests from my other specialists. I am getting much worse, it's a muscle movement disorder, and it's all in my nervous system. So far the psychosis and nerve tics are symptoms, it was affected and made worse with anti depressants and anti psychotics from the old 90's on back at 14 to 16 years old. Also recent internal brain damage and my body spasms randomly not as in nerve tics, but as spasms that I can't control my legs shake violently and it's difficult to walk. I am a vocalist in a band, I try singing, but my jaw is sometimes closed shut and impossible to sing eat or talk without massive pain. I have blood work coming in from Rhuematology today too.

I hope that the blood tests results are helpful.
Keep trying.

M

I have a diagnosis it's stiff man syndrome only affects 1 out of a million people in the general population. It's rare and it hurts a lot. I finally got my diagnosis being treated with a muscle relaxer now and it works and I'm finally mobile again. It's going to progress worse as expected, but enjoying movement now is such a great feeling you have no idea without any pain.