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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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So I will try to keep this as brief as possible. Five months ago I started having profound fatigue, head "pressure", and ear stuffiness. A week after this I came down with flu like symptoms...more fatigue, low fever, swollen lymph nodes, and feeling generally unwell.
Within a couple of weeks I started feeling a little bit better, but many of the symptoms persisted. I also started getting new symptoms, many of which seemed neurological. Parathesa/tingling on the side of my head, wide spread muscle twithcing, sensations of cold on my skin, and numbness in my hands and feet. I initially went to the doctor for the pressure I had in my head and ears, and was treated for a sinus infection. I returned many times to the doctor over the next few months, and repeated blood work was mostly normal. My white count was slightly elevated at one point, and my testosterone was lowish. I had many other tests for ebv, HIV, Lyme disease, etc. Even worse than the physical symptoms are the psychological craziness I've dealt with. I have had varying degrees of depersonalization and derealization that make me feel like I'm living in a dream. I've also had bouts of anxiety and depression like nothing I've ever experienced. My doctor treated me with antibiotics for a nearly a month at one point and the physical symptoms did seem to dissipate, but I was also doing everything else possible to feel better. Still, the psych symptoms persisted. Although I am significantly better now physically and mentally, I continue to have symptom flare ups. I find the muscle twitching and tingling extremely disturbing, and the psych issues havn't really gone away. It seems to me like an infection of some kind, because I'll wake up with sore lymph nodes in my neck and ear stuffiness. I'm just getting fed up, because I thought I was getting better but I've been having a major flare up this week, and I just want to know what I'm up against. The doctor has given up, so any suggestions or advice would be greatly appreciated. |
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