Hey what's up guys.

Unfortunately I'm dealing with some sort of mystery disease and after several years of trying to figure it out I've not made any real substantial progress. My GP was of course unhelpful and couldn't understand anything besides what an anti depressant or adderall could treat so I started my own research. I also saw a couple psychologists who said that I just needed to talk about my feelings and that it was all in my head.

This has been a slow progressive disease that started about 8 years ago and peaked about 4 years ago. 24 yo/male.

I've made SOME progress with a couple supplements but in reality I'm not doing very well. I've created a packet that I intend to take to an endocrinologist as well as a neurologist to speed up their understanding of where I'm at, and I'm just going to share that with you now.

I still have no idea what this problem could possibly be but it's effectively destroyed my life. Everything that made me who I am is basically gone. I'm just struggling through day to day praying that the new supplement I purchased after weeks of research makes all this go away and that my next forum post or doctor visit will yield SOMETHING definitive. I know I'm not that important in the big scheme of things but I need some serious help here and would be eternally grateful if someone could point me in the right direction.

Thank you so much for checking this out if you have/will and if anything clicks here, please share! Also, I have links to discussions of my situation on several other forums but I can't post links yet, if you'd like to see them feel free to PM and I'll link you right away.

Theoretical Diagnoses

• Cushing's Syndrome/Disease
• Epstein Barr Virus
• Lyme Disease
• Toxoplasmosis Gondii
• Adrenal Fatigue
• Wilson's Syndrome
• Hashimoto's Encephalopathy
• Depersonalization
• Sleep Problems – Apnea?
• Possible STI?
• MTHFR Gene Mutation?

Symptoms

If you are aware of the situation this is the symptom list for the "negative/cognitive" effects of Schizophrenia, absent of the "positive" ones which include paranoia, delusions, and hallucinations. I started treating from this diagnosis and received zero relief from all the typically powerful treatments. Seems as if this is not actually what I have even though the symptom list is me to a T.

Confirmed Disturbances

Low Temperatures

Body temperatures fluctuate from 96.0 F - 98.0 MAXIMUM but usually hovers around 97.0 +/- .5

Confirmed Epstein-Barr Virus 11/29/12

Subclinically Low T

Date Taken: 11/29/12

Free Testosterone @ 8.9 ------- UNITS: pg/mL ----- Reference Range: (9.3-26.5) Low
Total Testosterone @ 399 ------- UNITS: ng/dL ------ Reference Range: (348-1197) SubC Low

Elevated Cortisol Levels:

1:30 PM (Awaken) - 0.59 mcg/dL Slightly high
7:00 PM - .05 mcg/dL (error??? extremely low)
11:16 PM - .26 mcg/dL High (< OR = 0.09)
3:20 AM (Bed) - .20 mc/dL High (< OR = 0.09)

Here are the reference ranges provided by Quest:

8-10 AM: 0.04-0.56
4-6 PM: < OR = 0.15
10-11 PM: < OR = 0.09

Helpful Supplements & Response

• Phosphatidylserine – Powerful cortisol reducer / cognitive protector.
• Severely positive response. Therapeutic. Returns ability to experience emotions/understand how I feel about reality.
• Ashwagandha – GABA mimic / Anti Inflammatory
• Increase in sense of well being / increase in cognition. Decrease in brain fog / decrease in feeling of being severely spaced out
• Samento (Cat's Claw) - Anti Inflammatory / Broad Spectrum Antibacterial
• Decrease in anxiety – Mind calming
• Hydrocortisone (Cream / Topically Applied)
• Lion's Mane
• PQQ/Ubiquinol
• Adderall
• Modafinil

Unsuccessful Supplements/Medicines/Pharmaceuticals

• Sarcosine
• Sarcosine + DAA
• Pregnenolone
• N-Acetyl Cysteine
• Folate (Metafolin)
• L-Methylfolate
• Niacin
• High EPA (2g) Fish Oil
• Rhodiola Rosea
• Banderol
• Pinella
• Na-R-Alpha Lipoic Acid
• Iodine Replacement/Supplementation
• Dessicated Adrenal
• Reishi Mushroom
• Piracetam
• Noopept
  
• Effexor
• Zoloft
• Vyvanse
• Welbutrin
• Abilify
• Mirtazapine

Labs

Date of Service: 09/18/2014 – Thyroid Panel (All normal)

• THYROGLOBULIN ANTIBODIES <1 < or = 1 IU/mL CB
• THYROID PEROXIDASE ANTIBODIES 1 <9 IU/mL CB
• T4, FREE 1.2 0.8-1.8 ng/dL BH
• TSH 2.16 0.40-4.50 mIU/L BH
• T3, FREE 3.6 2 .3-4.2 pg/mL BH
• CORTISOL, TOTAL 13.0 mcg/dL CB
  
• Reference Range: For 8 a.m.(7-9 a.m.) Specimen: 4.0-22.0
• Reference Range: For 4 p.m.(3-5 p.m.) Specimen: 3.0-17.0
• Please interpret above results accordingly *
  
• T3 REVERSE, LC/MS/MS 17 ng/dL EZ

Date of Service: 09/05/2014 – T Level Investigation Panel (Subclinically low T, slightly elevated E2)

• Free Testosterone @ 8.9 ------- UNITS: pg/mL ----- Reference Range: (9.3-26.5)
• Total Testosterone @ 399 ------- UNITS: ng/dL ------ Reference Range: (348-1197)
• TSH @ 1.19 --------------------- UNITS: UIU/ML ----- Reference Range: (0.34 - 5.60)
• FSH 3.0 1.6-8.0 mIU/mL BH
• LH 4.0 1.5-9.3 mIU/mL BH
• PROLACTIN 9.1 2.0-18.0 ng/mL BH
• ESTRADIOL 25 < OR = 39 pg/mL BH

Comprehensive Lab Work (Chem/Lipid Panel etc):
Unable to share links, so I'm not sure how to share this. I scanned the documents and uploaded the pictures. They all turned out normal though, just wanted to share everything I had if I could.

This is a lot of information and a lot to process. I have a lot of theories with evidence supporting them with each piece of evidence but after some of my fundamental theories being put to rest by lab results and testing (Schizophrenia, Low T, Hypothyroid, Adrenal Fatigue) I'm basically lost. I don't know exactly where to even begin looking anymore. I plan on seeing an Endo and Neuro ASAP but until then I'm still doing as much research and discussion as possible to try to put this nonsense to rest, or at least find some comfort in a diagnosis.

If you want any more details on any of the information provided feel free to ask, I will be checking this and other threads like it every day. Thanks guys, it means the world to me.