[mrsD]

It is difficult to say about the Lyrica. Two weeks is not really very long to be using it.

[kiwi33]

Hi Tb12

You might find this link and links therein interesting in the context of Lyme Disease in Australia; http://www.huffingtonpost.com.au/201..._ref=australia .

[Kanna]

I have a question for you....have you experienced having shortness of breath?
The reason I ask is because I have experienced the jerking of legs, extremities, cramping, GERD, feelings of electrical pulses, and tingling. The only one that isn't a part of what I have is the GERD.

I suffer from chronic iron anemia. My liver doesn't store iron like other people do. My body flushes extra iron out of my system, so I do not have an extra supply if I happen to have something throwing my iron levels to lower. Mine will just continue to lower if I don't get iron infusions and/or blood transfusions. One of the signs of not having iron stores is a feeling of being tired, twitching, tingling and itching of extremities. My iron levels 3 years ago got so low that I had to have 4 blood transfusions and 2 iron infusions over a week while in the hospital. I almost died, so I am an advocate of getting your iron stores checked in addition to your iron levels.

I hope that this will help you to at least have one more thing to check and knock off of your list. It isn't very common. It is unusual to have chronic low iron stores but it is worth checking because you could also have acute iron issues which are quite common.

[Tb12]

Shortness of breath and tiredness and lethargic are huge symptoms on top of my symptoms..

My only concern is my routine bloods are fine besides a few markers here and there that change like ferritin, csr, ESR, Atl liver... But last check everything was fine on routine bloods?

[Kanna]

Originally Posted by Tb12

Shortness of breath and tiredness and lethargic are huge symptoms on top of my symptoms..

My only concern is my routine bloods are fine besides a few markers here and there that change like ferritin, csr, ESR, Atl liver... But last check everything was fine on routine bloods?

Ferritin is the one that you need to keep an eye on. That is the marker for iron stores in your liver. If it is high, or low, it can cause quite a few of your symptoms.

[tenor12]

I'm shaking my head here, just reading your symptoms and the range of tests and comments by medical professionals that you're reporting - I'm not in Australia, so no help re: any specialists local to you, but KEEP DIGGING! By sharing your story, you're helping all of us. THANK YOU!
And I hope you've made some progress.

Just a couple of questions/thoughts:
If you thought you were bitten by bed bugs, maybe it was something else, and that little biter's carried a micro-virus or something into your system.
If you were in the US, have you considered contacting the CDC in the US?

On the other hand, if experts seem to be ruling out disease, then maybe this is the result of injury? Any head-knocks or awkward tumbles, either at work or play? Football, hiking, biking, climbing, watersports, what-have-you?
My story is workplace injury, full faceplant under a loaded 5'x5.5'x1.5' castered laundry rack. Very lucky I didn't actually break my back, neck or skull, but since then I'm dealing with persistent pain, tremens, spasticity, unreliable muscle response and motor functions, and profound fatigue, such a short rope for energy, use it up so quickly when I'm trying to cover up my inadequacies and make like I'm just fine. Some days I just can't fake it.
Doesn't seem from your writing like you have any confusion or brain-function problems...but maybe you don't focus on what isn't working well in that regard. It took a year for me to get diagnosed as having had concussion, what with the doctors and the workers' comp system all saying that the symptoms I was reporting were just my imagination. I was so ashamed, thought I was going mad. It wasn't until others reported or witnessed for me that I got what help I've had.
So I wonder if you had a head injury, maybe not even a major one but an accumulation of a series of apparently minor ones? Doesn't need to be a major skull-crush to mess up your neuro-muscular responses. The effects can be tricky to get a good 'picture' of, because you seem like me, just wanting to get whatever it is fixed and get your life back, which makes it likely that you'll be the first one scoffing at yourself - add that to the less-is-more/just-get-over-yourself response of a lot of doctors and insurance schemes, and presto, you have the perfect shaming/trivialization chorus, which is worse than no help at all!
You have a right to be as well as possible; keep asking for what you need, never give up!

[Tb12]

Thanks for your message it means so much..

As far as concussions I am unsure, I use to do pro wrestling and I took a huge amount of pounding on my head and body...

I had to leave due to back problems..

After that I started getting black eye floaters ..

I never felt the same again, I always felt weak and what not..

I then started having sensory issues like a numb face and what not on occasions and my memory to me is really bad I can barely recall any of that time I wrestled unless I watch tape or what not..

I can meet someone these days and within a few days forget their voice and facial features..

I'm hit sure if that's normal or not...

But then I got hit with all the other ongoing health issues..

The dr finally sent me for a few gene tests for klinefelters syndrome and kennedys disease but these test take 2 months to come back so my anxiety is at a all time high..

Thank so much for your concern it means a lot.

[LongRoad]

It sounds like Functional Neurological Disorder (FND). It also has several other names: NEAD, Conversion Disorder, Pyschogenic Non-epileptic Seizures (PNES), Psychogenic Movement Disorder, etc.

**

I hope you find the answers that you need. If it is the above, it's a very long road!! I would like to hear a follow-up of how you are doing.

[bddouglas]

Tb12,

I have a friend that had some horrible symptoms and was often stuck in bed. She was finally diagnosed with Idiopathic intracranial hypertension or pseudotumor cerebri. Her neurologist and ophthalmologist worked closely together to get her symptoms under control.

I wish you the best.

[Tb12]

Thanks for the comment bdouglas

Did she have any symptoms I have above? Especially the neurological ones or?