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Pseudotumor cerebri

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Old 09-30-2015, 11:45 PM #1
Midnight_Sun Midnight_Sun is offline
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Smirk Pseudotumor cerebri
Hello everyone!

I am just looking for anyone else here who is suffering from not only annoying to pronounce disease but an even more so annoying one to have. I'd just love to share some experiences and hear some... mainly if the pulsatile tinnitus ever ends or if I have a permanent heart rate monitor in my ear.

Thanks, and I hope to hear from some of ya!

~*~ Midnight Sun ~*~
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Old 12-07-2015, 09:13 PM #2
Nursenicole103180 Nursenicole103180 is offline
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Hi, I have this as well.
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Old 01-11-2016, 04:59 PM #3
D.bruemmer D.bruemmer is offline
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I have this to.
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Old 01-21-2016, 06:46 PM #4
Hunnymck Hunnymck is offline
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Default help!
I was recently diagnosed with pseudotumor cerebri following a car accident with a head injury. My first symptom was some vision loss, which led to the MRI to figure out what was causing the optic nerve damage.
I feel very lost and alone to navigate this diagnosis, the symptoms, the medication side effects, the prognosis, etc.
I would greatly appreciate some dialog with input from people with experience.
Thank you!!!!
Hunny
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Old 01-24-2016, 09:09 PM #5
Hunnymck Hunnymck is offline
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Default Headache/migraine
I have suffered from migraines for years. I was only diagnosed with PTC/IIH on January 7 of this year. I just had my first pressure migraine today! OMG. The worst pain ever!!!!! I turned to Imitrex because I have had moderate results in the past, that was a joke. What experience have others had with these insanely excruciating headaches? What works? Need some help
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Old 01-24-2016, 09:43 PM #6
Lara Lara is offline
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Hello Hunnymck,

Welcome to the NeuroTalk Support Groups.

You could try posting over on the

Headaches (includes migraine) Forum

There may be info in the "Sticky" threads at the top of that forum that may be of help. They contain information and useful websites etc..

I also wanted to let you know that the Pseudotumor Cerebri posts tend to be scattered on several of the forums here. If you use the forum search feature (link below) you can type in search terms and chose to find either threads or posts.

Forum Search Feature

I'm very sorry you're in so much pain.
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Old 01-24-2016, 11:50 PM #7
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This general information might help members with Pseudotumour Cerebri; http://www.mayoclinic.org/diseases-c...n/con-20028792.
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Knowledge is power.
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"Thanks for this!" says:
Lara (01-25-2016)
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