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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#11 | ||
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New Member
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Oh MY! Reading your post was like reading my own diary! Everything you mention is exactly what I am dealing with. Even sleeping with the ice bag. Doctors always think I'm nuts - and you're right - dermatologists are especially useless. I've had this condition off and on for at least ten years...but this summer has been brutal. Right now I'm typing with an ice bag balanced on my arm. I'm printing your post and taking it to a new chiropractor this week. Thanks for summing it up so well. |
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#12 | ||
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New Member
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I've got it too and it is brutal. Its ice packs on both arms for me to fall asleep nightly. For me it goes away in the winter, thankfully, because if I had it year round I seriously might consider killing myself because the itch is so bad it is painful and difficult to sleep. I am fairly certain it is heat related and not sunlight related because I have tested my reaction to both and it seems to react negatively to heat conditions but not necessariy to sunlight without heat. In fact, when I first got this 9 years ago I was living in a very hot and humid SE Asian country with no air conditioning in my house. But at the time, when I would travel and stay in air conditioned hotels for any length of time, the condition would go away until I returned to non-airconditioned accommodations. I too have been to the dermatologists and they are useless. I have come to the conclusion that it is nerve induced because it comes from underneath rather than the superficial part of the skin. Lately I have felt a subtle tingle and slight burning sensation radiating into my index fingers.
I'm still searching for a treatment or cure. Please share if anyone gets rid of this thing. |
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#13 | ||
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Junior Member
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I have peripheral neuropathy in my feet ( idiopathic at the monment) which started in June & seems to be progressing quickly.
A few weeks ago my arms started to itch really badly, to thr point where I have cut myself with scratching them.I dont know if its connected to the PN or not. I see my neurologist in November so hope he can shed some light on it. I find that cold flannels wrapped round my arms helps a bit. |
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#14 | ||
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New Member
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Yes, it is brutal!! I have had it for 30+ years and have never found a doctor who knows what to do. Also, I thought that I had been going through menopause with hot flashes for over 20 years, but I think part of this disease is connected to heat, and my body seems to want to produce too much heat, too often, and then I get the attack of the burning itch on neck, upper arms and back. I am even breaking out on my neck now, probably from scratching too much. I am so thankful to find all of your comments, as you convinced me that I am not just going "nuts". I think I will try the acupuncture. I will let you all know how it works for me.
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#15 | ||
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New Member
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I suggest, based on my personal experience, this is an allergic reaction to berries, primarily strawberries, secondly blueberries. Hence the seasonal aspect. Eating as well as working in the patch results in incredible, under the skin, itch in the forearms. Advil is the quick fix but the cause seems to be a reaction.
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#16 | ||
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New Member
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I have suffered with this for years. I have seen dermatologists, internal med docs, neurologists, and even an allergist. Most said stress and while on Prozac...another said itching was a symptom of Prozac. Two years ago....an allergist told me it could be allergies. So he placed me on Claritin....it is the only thing that has ever helped. I take 3 to 4 claritins per day but I still have big bouts with itching. Finally I found this post...Since finding it, I have read a lot more. What is working for you all? Where should I start?
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#17 | ||
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Elder
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I am glad that something at least is good. Doctors are starting to pay attention to this. My mother had something like this for many of the last years of her life. (30 years ago) They always told her it was all in her head, making her feel really bad. It wasn't in her head. I appreciate this thread, as now I know what my mom most likely had. I hope relief and a cure can be found. ginnie
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#18 | ||
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Newly Joined
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#19 | ||
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Magnate
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--is called dermatitis herpetiformis, and is diagnosable by sampling the lesions and looking for the telltale IgA deposits:
http://en.wikipedia.org/wiki/Dermatitis_herpetiformis http://emedicine.medscape.com/article/1062640-overview |
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#20 | ||
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New Member
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I'm happy I found this site...I have suffered from BP for about a year...tried lots of things..lemons...witch hazel...ice.. Tricalm...all the things suggested here. But, I finally am getting relief...GAPAPENTIN ..My dr actually prescribed this for me a while back for mild anxiety, and sleep aid. I don't take it regularly anymore, but had several capsules left. After reading several suggestions on several websites, I went back to a regular regime of 300mg/3 times a day, starting 4 days ago....and I am virtually itch-free!! I have occasional prickling on my arm ,but NO where close to the itching I have had for the past year.....and I'm sleeping better and not waking up to scratch . I still am using some topical creams (just as a safety measure).
ASK YOUR Doctor for some GAPAPENTIN.....you may feel a little "slow", but even if you took it late in the day...you could sleep and not itch! I do not sell pharmaceuticals.....I'm just an itchy guy! Hopefully "former". |
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