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Old 07-27-2007, 10:43 PM #11
dahlek dahlek is offline
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Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
dahlek dahlek is offline
Magnate
 
Join Date: Aug 2006
Location: metro DC suburbs
Posts: 2,576
15 yr Member
Default Having just gone thru the ...

whole BC route last year, plus this year diagnosis of Hashi's and Osteoporoisis from 'penia' before...after getting CIDP a few years ago...well...... Face it?
Just ask them point out to do the WHOLE THING! and, if your insurance will clear it ask for a PET SCAN [if not these providers will either provide assistance or do it for free- I know as I was ASKED about this - during the whole 'process']
I can only say from my experience, that I truly wish they'd run the WHOLE alphabet/number panel on me as I've a family with a whole history of a variety of cancers...
Now when any doc says: you have X! I go, well why not one more? It's little comfort, but the important thing is- REALLY important is to get treatments as soon as possible! No delays, but, give yourself a day or three [especially if docs are pressing to DO IT NOW!] It's better to poll all your other docs about WHO should do what to YOU in the way of surgerys - I asked each of my existing docs at the time, 'IF IT WERE YOU, WHO WOULD YOU GO TO?' Give me three names...I'd found the surgeon, plastic surgeon and oncologist I chose on each of my other doctors lists...they each gave me 3-5 names...

Then I researched the heck out the docs! Checked with the local hospitals, webbed them up to see what papers they were afilliated with, and what their overall credentials were, as well as some of those patient-feedback websites. That you have such a sensible neuro nurse is good...BUT YOU have to have and learn all the basics to make your own decisions, clearly and without confusion..
Should you have any questions at all, I think I can help you find the non-neuro resources you may need. If not at my fingertips, I will find them..
As for being scared out of your mind and then some? Yep! I've been there, and well, I guess I'm OK as I think I'm typing sensible sentences?

- sounds like you need, no require a couple of these! - j
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