Go Back   NeuroTalk Support Groups > >

General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.

Desperately need help for my mother... delayed radiation brain damage.

Reply
 
Thread Tools Display Modes
Old 03-18-2019, 06:34 PM   #1
shaney777
New Member
 
Join Date: Mar 2019
Posts: 5
Default Desperately need help for my mother... delayed radiation brain damage.

My mother is 53, 5' 5", 175 pounds, and Caucasian. She had brain surgery/chemo/radiation a few decades ago to treat stage IV glioblastoma multiforme cancer. About five years ago, we noticed her walking started getting worse. Fast forward to today - she is completely bedridden, almost no memory, needs help doing everything, etc. A few neuro docs know about it, and they say this is ALL due to delayed radiation damage. They say nothing can be done... But my mom is getting worse and worse so quickly... What is her future going to be like? We need help badly... Degeneration is happening rapidly! What else can we do? I keep thinking some "better" doctor might know more about treating delayed radiation damage. Something experimental? Honestly, I can't find jack about it online. I can't research this diagnosis on my own because the information just isn't here... Give us some guidance please!
shaney777 is offline   Reply With Quote
Old 03-19-2019, 01:42 AM   #2
kiwi33
Magnate
Community Welcome Team
 
kiwi33's Avatar
 
Join Date: Jan 2015
Location: Sydney, Australia.
Posts: 2,514
My Mood: Desperately need help for my mother... delayed radiation brain damage.
Default

I am very sorry to read about your mother; you have my deepest sympathy.

I am not sure how useful this is but one possibility is that the tumour has returned (a CT or MRI scan could help here) rather than what your mother is experiencing being a consequence of radiation damage.

With care.
__________________
Knowledge is power.
kiwi33 is offline   Reply With Quote
Old 03-20-2019, 01:38 AM   #3
shaney777
New Member
 
Join Date: Mar 2019
Posts: 5
Default

Quote:
Originally Posted by kiwi33 View Post
I am very sorry to read about your mother; you have my deepest sympathy.

I am not sure how useful this is but one possibility is that the tumour has returned (a CT or MRI scan could help here) rather than what your mother is experiencing being a consequence of radiation damage.

With care.
Thank you so much! <3 Yes, she hasn't had a brain scan since the memory problems and confusion set in. However, she has had a brain scan far into the walking issues, and there was no cancer then.
shaney777 is offline   Reply With Quote
Old 03-20-2019, 01:03 PM   #4
Jo*mar
Co-Administrator
Community Support Team
 
Jo*mar's Avatar
 
Join Date: Aug 2006
Location: USA
Posts: 25,896
My Mood: Desperately need help for my mother... delayed radiation brain damage.
Default

Search on Pubmed for studies & info..
__________________
These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
Jo*mar is offline   Reply With Quote
Old 03-28-2019, 04:42 PM   #5
shaney777
New Member
 
Join Date: Mar 2019
Posts: 5
Default

Quote:
Originally Posted by Jo*mar View Post
Search on Pubmed for studies & info..
Pubmed? I'll look into that. Thank you!
shaney777 is offline   Reply With Quote
Old 03-28-2019, 10:22 PM   #6
Marlene
Member
 
Join Date: Apr 2007
Posts: 482
Default

Try searching in google scholar for delayed brain radiation damage.
Marlene is offline   Reply With Quote
Old 04-14-2019, 06:38 PM   #7
shaney777
New Member
 
Join Date: Mar 2019
Posts: 5
Default

Thank you!
shaney777 is offline   Reply With Quote
Reply

Tags
brain, damage, delayed, radiation, worse

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Brain injury victims can seem OK, symptoms delayed (AP) (Yahoo) NewsBot Traumatic Brain Injury and Post Concussion Syndrome 4 03-23-2009 08:05 AM


All times are GMT -5. The time now is 03:41 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy