[tomhe204]

Hello members

I have terrible burning and shooting pain in both legs, main pain area is knees. hypersensitive in this area as well. coughing for example also hurts in both legs. standing creates the worst pain in general or climbing stairs. In general activity makes more pain than resting. but there are no motoric impairments. I can do everything just with constant pain. resting pain for legs in bed is dull with random nerve firing.


I suffer from this only a couple of months. but it gets worse by the week. It got to a point that it interferes with my daily life. i can no longer do any sports, quit my job etc.


All tests came out clean. only thing oustanding is biopsy for small fiber neurophaty. done so far, mri‘s ( all body including brain) x-ray, ultrasound nerves in legs, EMG, NCV, various blood test, urin, lumber puncture etc. No autoimmune disease etc

I saw around 4 neurologists so
far. Currently in hospital to ask for stronger painkiller. regular painkillers, including tramadol were no help

odd point here, all medication i took so
far for nerve pain: lyrica, gabapentin, amitrypeline made symptoms worse. anybody make any sense of that, can you be allergic to these? opposite effect?

I am about to lose my mind. No diagnosis but pain 24/7. I also have strange leg sensations. super sensitive. sexual stimulation causes also nerve pain legs.but apparently my nerves are all healthy. doctor meant you can go running etc, nothing will break…

anybody has any idea? Appreciate any input.