I didn't realize Alena posted on Neurotalk, I've seen her archived posts in BrainTalk. I have the SAME exact visual problems and the only thing I have is Myasthenia Gravis. This isn't the typical eye lid drouble or double vision, but just as exactly as you describe. This all started in April for me. My doc thinks it's the Myasthenia causing it after ruling out MS and a bunch of other things. If anyone has anything to add, please let me know. i've been tested for Lyme twice, negative both times. I go to the Mayo in a couple of weeks to speak to the neuro muscular specialist.

Im going to keep bumping this thread because its important to me that the valuable information alena has provided along with my same issue it will hopefully help someone else one day. Since i started with the exact visual issues as alena i have additional symptoms that have appeared. Alena was very creative that she created a visual simulation of what she was seeing that was grabbed by the migraine aura foundation based out of Germany. Her posts alone have given me hope abd confirmation this was not psychosomatic. Her gif is called autokinesis. Anyways, since i started ive noticed coordination problems, more noticeably in my dominant hand of course. I have to try harder to coordinate writing and other movements. Proprioception has become an issue as my heels feel like they lose sense of the ground, almost like vertigo, but more sensational. Alena complained of this as well. Mris have been normal (including dye and of spine )as well and spinal tap, eeg, lyme testing, blood work, and paraneoplastic blood tests. Ive done nothing since April because it gets tiring and discouraging. Anyways, i suspect ataxia, perhaps recessive condition rather than ms or mg. Ms is much more common than rare genetic. ataxic disorders although ataxia is a symptom. I am having another mri soon with not much optimism. I also had extensive balance testing at the university of miami that indicated a failed caloric response and possible convergence disorder. Dont give up if youre an individual that comes across this one day. I hope i can find an answer to help others because ive seen others posting on other sites. They are not recent though. I do ask that if you're an individual that reads this and feels i dont belong writng on this forum to kindly move on to another thread. When i first posted on the ms forum i was asked by a nurse with mg to not post there because i could be upsetting other members. You dont know what me and this young lady are going through and im truly just hoping this is helpful one day. I wish everyone the best and i will folliw up in time. The benefit of alenas posts gave me atleast a timeline of her progress. Happy holidays.

Im going to keep bumping this thread because its important to me that the valuable information alena has provided along with my same issue it will hopefully help someone else one day. Since i started with the exact visual issues as alena i have additional symptoms that have appeared. Alena was very creative that she created a visual simulation of what she was seeing that was grabbed by the migraine aura foundation based out of Germany. Her posts alone have given me hope abd confirmation this was not psychosomatic. Her gif is called autokinesis. Anyways, since i started ive noticed coordination problems, more noticeably in my dominant hand of course. I have to try harder to coordinate writing and other movements. Proprioception has become an issue as my heels feel like they lose sense of the ground, almost like vertigo, but more sensational. Alena complained of this as well. Mris have been normal (including dye and of spine )as well and spinal tap, eeg, lyme testing, blood work, and paraneoplastic blood tests. Ive done nothing since April because it gets tiring and discouraging. Anyways, i suspect ataxia, perhaps recessive condition rather than ms or mg. Ms is much more common than rare genetic. ataxic disorders although ataxia is a symptom. I am having another mri soon with not much optimism. I also had extensive balance testing at the university of miami that indicated a failed caloric response and possible convergence disorder. Dont give up if youre an individual that comes across this one day. I hope i can find an answer to help others because ive seen others posting on other sites. They are not recent though. I do ask that if you're an individual that reads this and feels i dont belong writng on this forum to kindly move on to another thread. When i first posted on the ms forum i was asked by a nurse with mg to not post there because i could be upsetting other members. You dont know what me and this young lady are going through and im truly just hoping this is helpful one day. I wish everyone the best and i will folliw up in time. The benefit of alenas posts gave me atleast a timeline of her progress. Happy holidays.

I apologize for the duplicate its difficult posting from a phone. I would like to add my doctor is not ruling out ms but my vision issues to me don't align. I don't have optic neuritis or constant nystagmus along with negative mris. Its all been disheartening though because at 28 i wish i felt normal and my vision was better. Its a struggle to perform everyday activities especially working on a computer buf im still working full time and masking my problems as much as possible. I took out a 20 year life insurance policy a year and half ago before im diagnosed with anything to protect my wife financially s and a full term policy as well. I am protected by the medical leave of absence and have short term and long term disability through work in conjunction with their life insurance. Ive done everything i can in the past 2 years to put things in order. 2015 is my year to hopefully get an answer because i am losing my EPO whichcovers everything 100 percent that is in network to a PPO in 2016.