Gene test costs $670 - cash!!!

dllfo · 03-24-2008, 05:23 PM

Researchers have identified a particular gene defect (PHOX2B) associated with congenital central hypoventilation syndrome.

I spoke to Rush Hospital in Chicago. They told me to draw blood normally, send it regular mail ... with a check for $670, or money order.

They are the only, only lab I found that does this test. I called several places on the internet, places doctors suggested and so on.

Anyone know of a "better" place?

rumpled · 03-25-2008, 07:02 AM

Yikes!
Make sure you know the type of tube (i.e. if it is a serum or EDTA tube)... and they don't have a kit to send it in? Most places have a biohazard kit and special packaging so the tube does not break and if it does, it does not um, get all over other stuff.

http://www.newsrx.com/article.php?articleID=906020 mentions Johns's Hopkin's but otherwise it is all Rush like you said...
I could not find anything else either.

michael178 · 03-31-2008, 05:01 PM

Try GeneDx, they are on the east coast, maybe Maryland, if I remember right.

dllfo · 05-01-2008, 03:24 AM

Thanks, I will.

My pulmonologist knows the lady who owns this lab but he did not offer to run interference. Grrrrrrr.

Green_MnM · 05-06-2008, 12:15 PM

wow.. do you have FSA or HSA you can use to pay for that?

dllfo · 05-06-2008, 11:04 PM

I don't know what FSA or HSA is. I have Medicare, Tricare For Life and a third medical insurance that pays what Tricare doesn't pay.

See the thread about taking 30 minutes to wake up.

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Gene test costs $670 - cash!!!

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