General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.

 
 
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Old 09-16-2008, 08:12 AM #2
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mrsD mrsD is offline
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Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
mrsD mrsD is offline
Wisest Elder Ever
mrsD's Avatar
 
Join Date: Aug 2006
Location: Great Lakes
Posts: 33,508
15 yr Member
Lightbulb It is a shame

your doctors are treating you this way.

If you feel better with higher B12 levels, who are they to say to stop using it? In fact in Japan and some other countries, patients with levels below 500 are routinely treated. Low B12 issues
mimic MS. If you Google that you will find many sites which explain that.

Here is Rose's website:

http://roseannster.googlepages.com/home

If you come on to our Peripheral Neuropathy forum here, there are other Aussies who use oral B12 successfully that you
can talk to.

You don't have to use injection. You can take the sublingual form easily. www.iherb.com does ship to Australia, and they do allow personal quantities to be imported there.

Longer term use of proton pump inhibitors like you have been doing lead to other deficiencies:
B12
folic acid
calcium
iron
zinc

They have also recently been shown to cause osteroporosis.

I would also suggest you have a Vit D level drawn to see if you are low in that. Many people with chronic health problems are testing very low in Vit D.

Another factor is gluten intolerance. Reactions to gluten in food lead to both malabsorption of
nutrients, including B12, in the GI tract, and also MS like symptoms. Australia has a very active
Celiac community. You do not have to be genetically Celiac to have gluten intolerance however.

This subject of gluten is huge, and here is a very complete reference for you to look over.
http://neurotalk.psychcentral.com/thread1872.html
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