So this was a tough week. My wife wound up in the ER because she woke up not able to feel the left side of her body and her lips, nose, fingers and arms were twitching unvoluntarily. I think that qualifies as a seizure. They took a CT and an MRI and found out she had a Septum Pellicidum cyst. I am not clear on what that means but I do know that she has had an extreme headache that nothing seems to cure. Motrin barely takes the edge off allowing her to bear it. I feel so bad for her as I know that she is really scared of the unknown aspect of this. She has allready been through one brain surgery to remove a Rathke's tumor and the thought of a second surgery scares the living daylights out of her. I wish I knew how to be there for her. As a man I am used to being the fixer and the one who does things to make things right and the fact that I can't fix or do anything about this frustrates the daylights out of me. I don't know that frustrates is the right word though. I worry about her and wonder if she will wake up from the nights rest and I am scared as hell to lose her.

I'm so sorry to hear about this latest setback for you and your wife. I wish there was something I could do to help but unfortunately there isn't. Please know that I'm keeping you and your wife in my thoughts and prayers.

I too am so sorry to hear about your wifes latest setback , please send her my best wishes and tell her that she is in my thoughts.

I am so sorry that you can't do anything to fix your wifes ilness I'm not a caregiver but I can tell you from a patients point of view that the one and only thing that matters to us is that you Caregivers, family and friends etc are there to support, listen, comfort and love us. That is all we ask. You are doing a great job in looking after your wife and I am sure she greatly appreciates all of your help and support, it can't be easy for you. I have a LOT of credit for all of you Caregivers, you are all the best.

Take care of yourself and you and your wife are in my thoughts.
Please keep us all updated when you can.

Alison

He is the best.I know with him by my side the days are a lot better.Sccobybean Thank you for being there for me.
I have an appointment on Wednesday with my pcp and then he will refer me to a neurologist and hopefeully we will get answers.