General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below.


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Old 09-17-2006, 02:56 PM #31
Jaye Jaye is offline
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Default Who knows?

I have had upwards of five doctors at a time, none of them able to find a reason for that much pain. For me the answer was not to stop going to doctors but to keep working with the ones I had, firing the ones I couldn't work with, and finally finding the answer--myself--on the internet. I didn't diagnose myself, I just figured out what kind of doctor to see and what questions to ask. Now, please don't take anything that happened to me as applying to you, CT, but here's advice which is only my way of doing things.

How old you are doesn't matter. It can be Parkinson's (PD) or Osteoarthritis or anything degenerative, and it can still happen to younger people. Some docs don't know this.

What you already have doesn't matter. I have PD, so my neurologist could only see arthritis and my family doctor could only see Parkinson's, and no one was treating the buckling leg, the pain that doubled me over and got better with absolute rest, the shattered mind state that came with repeated inability to do as the docs ordered me (I also have a major clinical depression, physically caused, that is treated along with my PD).

A lot of people give up and become wheelchair-bound, etc., when they don't need to. Docs worry about this. They urge you to keep moving. I know they're right to do so, but the body doesn't lie.

See an article called "Anterior Hip Pain" at http://www.aafp.org/afp/991015ap/1687.html. Many, many amazing revelations for me were found there.

See the website of the Arthritis Foundation at www.arthritis.org. Exhaustively thorough, it covers all the bases. Avoid diagnosing yourself from it, or you'll be laid up for years! LOL

Ask yourself questions. Puzzle about it, looking for an overall picture. Post about it but remember we're not docs here.

Find a good Movement Disorder Specialist if brain-to-muscle signalling problems seem to be at work. I think there's one in Albuquerque at UNM Hospital (or whatever they're calling it these days). The MDS certification goes on top of a specialty in neurology.

And about Stress:
Reacting strongly to stress can itself be a symptom, as can your sleep patterns.
Personally, I have a deep religious faith that doesn't require me to leave my brains at the door and is quite accepting of other faiths and their practices (will it suprise you that it's a Christian way that's right for me and fits this description?). This is what keeps me afloat.
Massage and/or Reiki help. You can learn just the first level of Reiki to do on yourself for not too much money.
I"m sure you can add to this list.

For everything there is a season, a time to laugh, a time to cry,
a time to rest, a time to get up and put that 'puter to work!

Jaye

P.S. Much better today, thank you.
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Old 09-17-2006, 03:05 PM #32
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(((((((Jaye)))))))

What a powerful post!!!!!

Gosh, it's really touched me emotionally.

I so understand when you write about doctors saying to exercise only ...

Well, the pain.

And then the fact is that you get better with absolute rest.

Absolute rest!!!!!!!

We live in a society where "No Pain, No Gain," is the slogan... but pain is not good. Maybe for someone.

but not for ANYone with nerve disorders.

I have gotten so much worse so many times by simply pushing myself to ignore the pain.

(this is since I've had tetanus)

And what I've begun to wonder is whether, if I hadn't pushed myself to shut out the pain and do things despite it for so many years, if my health would be better now... my nerve health.

Whew!!!!!!

That's all I can respond to right now. (because I'm in overwhelm)

((((((((Jaye))))))))

Thank you!!!!!!
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Old 09-18-2006, 08:37 AM #33
Jaye Jaye is offline
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Default You're welcome

Anyone: what did you think of the anterior hip pain article? Too much medicalese, boring, what?

You know I'm not going to be happy with "too much medicalese." Maybe I can help some more.

Jaye
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Old 09-19-2006, 07:02 PM #34
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hi jaye. I just read most of it. I like articles like that where they break it down into tables and pictures. As far as the medical information, mine doesn't bother me enough to look into it, but if it did, that article would be one that I would review.
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Old 09-22-2006, 09:55 PM #35
Jaye Jaye is offline
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Thanks for your reply, dorry. I like the charts and tables, too.

Jaye
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