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General Health Conditions & Rare Disorders Discussions about general health conditions and undiagnosed conditions, including any disorders that may not be separately listed below. |
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#1 | ||
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New Member
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Over the past few years, my temples have sort of collapsed inward. Has anyone ever heard of this condition? Is there a technical name? I've found "lypoatrophy" which is loss of facial fat (typical of AIDS patients), but for me the temples seem to be the only area affected, and the right side more than the left. What diseases might it be associated with? I'm pretty sure I have some kind of autoimmune condition - my other symptons are hypothyroidism, oseoporosis, TMJ, back/neck pain/stiffness, headaches. I'm in the process of finding a diagnosis. Any info much appreciated. Picture attached.
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"Thanks for this!" says: | (Broken Wings) (11-08-2009) |
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#2 | |||
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Grand Magnate
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My friend, Maurine, went to the doctor for another malady. He mentioned her sunken temples and determined it was from a quick weight loss.
I hope you are able to find some answers. Welcome to NeuroTalk, roell29! ![]()
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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"Thanks for this!" says: | (Broken Wings) (11-08-2009) |
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#3 | ||
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New Member
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Thanks Rochelle. At least I found what appears to be the common name for it - "temporal wasting". Not too pretty, but looks like it might be temporary which is good. It can be caused by inflammation weakening the temporal muscles. I'm guessing the same inflammation is causing my TMJ and both are related to an underlying autoimmune syndrome. Take care.
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"Thanks for this!" says: | (Broken Wings) (11-08-2009), Twinkletoes (07-13-2009) |
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#4 | |||
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Wisest Elder Ever
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Welcome to NeuroTalk.
This might be the cause: http://en.wikipedia.org/wiki/Paget%27s_disease_of_bone It is very difficult to use the internet for diagnosis. So getting the testing needed for this condition is the only way you will know for sure. But based on your symptoms so far, Paget's is worth looking into.
__________________
All truths are easy to understand once they are discovered; the point is to discover them.-- Galileo Galilei ************************************ . Weezie looking at petunias 8.25.2017 **************************** These forums are for mutual support and information sharing only. The forums are not a substitute for medical advice, diagnosis or treatment provided by a qualified health care provider. Always consult your doctor before trying anything you read here.
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"Thanks for this!" says: | (Broken Wings) (11-08-2009), dmplaura (07-19-2009) |
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#5 | ||
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New Member
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Quote:
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"Thanks for this!" says: | (Broken Wings) (11-08-2009), Twinkletoes (11-09-2009) |
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#6 | ||
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New Member
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Yes, I've heard of it. My neurologist pointed it out this morning. I have MS. I guess I've lost quite a bit of weight. I'm 6'4" and I've hovered as low as 160lbs. for a while now. She mentioned the late stage cancer and AIDS of which I have neither as far as one can tell. I just need to "eat and move".
How is your overall health, weight? You know that the best place for answers is your doctor. He or she know you. I have no answer of course. But my next move would be to call someone who does. Best of all, Al Quote:
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#7 | ||
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New Member
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I have temporal wasting on my right temple, and none at all on my left side. I am 21 and when I look back at school photos it likes like it started around 7th or 8th grade... I believe, maybe sooner. Should I be concerned? Is it a serious condition? I know people have related it to HIV or TB, but I've had a TB test a little over a year ago and it was negative, and there is no way I can have HIV... I am just wondering what you know about it, because I am concerned and wondering if I should be worried. If you or anyone could email me back with some answers that would be much appreciated,,,
my email is *edit* please PM member thank you. Last edited by Chemar; 03-24-2011 at 07:40 PM. Reason: linking guidelines/privacy |
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#8 | |||
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Grand Magnate
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Quote:
Sorry, I don't know much about temporal wasting. Have you mentioned it to your doc yet?
__________________
Rochelle . . I've lost my mind ... and I don't miss it! LIFE HAS NO REMOTE -- GET UP AND CHANGE IT YOURSELF! |
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#9 | ||
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New Member
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Well i got a CT scan and they saw no tumors, my bones are healthy, but they could obviously see that the muscle is wasting away. They want me to take the images into a neurologist but i dont exactly have the money for that right now.. and I believe it is still getting worse on my right side, it just keeps wasting away very slowly.
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#10 | ||
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New Member
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It has taken a long time for me to find my way to this board.
I was diagnosed with MS in 2002 at 28 years old. My course has been somewhat benign, so when my face started to cave in I just focused on the cosmetic reasons. My neurologist never told me there was a connection to the temple hollowing, or sunken eyes. I'm attaching some pictures before I went down the plastic surgery road. I don't look good. I thought these were just cosmetic peoblems that were occuring with age. I had a doctor in Boston put in "bone filler" in my temples. He went a little overboard and overstuffed my temples. Now I'm understanding that the problem was a wasting of my temporalis muscle due to the MS (My begign MS). Has anyone else ever done anything like this? Have you had a better outcome? I have come to a dark place. |
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