sonia3
I am glad you found all of us here at Neurotalk. I am sorry for not replying sooner but just back from work day. Sad you are here for the reasons you are but I know you will find great support lots of info and meet some of the most understanding smart caring group of people you can ever be in contact with.
Have you visited our O.N. forum yet? here is the link
http://neurotalk.psychcentral.com/forum105.html
follow the link and read the stickies at the top .
a few of my friends have O.N. post in the O.N. forum here. I am sure you will find lots of info and help. One of my good pals with O.N. is looking into a SCS for her O.N. I will share and help anyways I can.
I am sending you prayers and an endless supply of low pain thoughts Sonia3 .
Welcome to NeuroTalk It is Nice to meet you .

PEACE
BMW

hi Sonia

CSF leaks are usually but not always associated with trauma or surgery to the the head as in my case, the symptoms are not as defined, as spinal leaks , that can be spontaneous or caused by botched epidurals or lumber punctures or congenital disease, they can be very hard to diagnose the less invasive technique is the MRI the next step is a CT cisternogram

can you remember hitting your head around the time this started ? it would be extremely rare to just develop a cranial leak

hope the tests rule out this problem , you will find support and knowledge here at NT

and a big fluffy welcome

I hit my head 1 year before this started ???