advertisement
Reply
 
Thread Tools Display Modes
Old 12-20-2014, 08:38 PM #1
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Question Apparent Trends Noticed - Long Explanation

Hello All.

Without going thru my entire story again for you, I figured Id just leave the new member into link here in case anyone wishes to read it over.

Help My New Member Intro - Disabled Marine Corps First Sergeant (can't post any links still yet, sorry)

Have been treated for my chronic pain for last 3 years at least and generally this has centered around the neck injury most, which obviously leads to my headaches and migraines (migraines at least 1-2 times a week- and headaches daily) so life for me has been VERY difficult. My neck treatments have been everything from Trigger Point Injections (just had 12 done 3 days ago- and these do help a bit) Facet Joint Injections, Radio Frequency Ablations, and I have tried Botox, acupuncture, topical med creams, and am on muscle relaxers, pain killers, and of course my other "happy meds" to treat my PTSD etc.

Recently I was lucky enough to find a new pain management Dr who for the last 7 years was the Director of ALL Pain Management for Wounded Warriors at Walter Reed / Bethesda Naval Hospital and has treated thousands of Active Duty Servicemembers with the same medical issues I have - since mine was primarily caused by my last IED blast exposure. He is the one who has educated me about the fantastic results obtained thru Ketamine Infusion and thus why I am about to start this with my first 1 hr procedure after the new year. Since he has told me of the great pain relief these troops have seen relief of, the PTSD, depression, anxiety and other extra relief it seems to provide them, I am very serious about this treatment and am at the end of my rope (no pun intended) since I have tried just about everything else. Yes there was a point where my pain was so severe I planned my demise and thankfully reached out for help and ended up at an intense PTSD program at theBaltimore VA Hospital which no doubt saved my life, and opened my eyes to a lot of coping methods and all.

Back to right now and the trends of pain Ive been observing. The Doc asked me to try and differentiate the difference between my NECK pain and HEAD pain as best I can. I have come to notice that my NECK pain is greatest at night which thus creates a headache that brings the symptom of feelings of a long hot knitting needle being jammed into my right eye (best analogy I have) and it also creates tears from this right eye only too! I then go to bed with either heat or ice (often trying both) and hardly ever sleep thru the night which results in waking with a brutal headache from no sleep etc. Both the neck and head pain then tend to subside during the daytime and I actually feel ok, but then at approximately the same time everyday (3-5pm) it starts to come on again starting at the neck - and off we go into the same vicious cycle again! Some days I take only a few Percocets when my levels are low, and others I am WAY over the limits due to my tolerance from so many years. Yes Ive read about Rebound Headaches and everything associated with this issue.

I was asked long ago to start a headache journal which I never did, but now think I may do so. Some meds work better than others and now that Im a Veteran you'd think Id be using the VA Hospitals since I'm 90% Service Connected (Disabled) and that all of this treatment is free? NOT - and I even work for VA (Not the VHA or anything involved with healthcare) but I now see why so many Vets are livid about stuff within the revolving doors. Hell they just started doing acupuncture 2-3 years ago, think they'll do anything like Ketamine stuff- NOT! They flat out STOPPED any opiate prescriptions without even titrating me down which is absolutely crazy - so therefore I use my great insurance for them with this awesome Pain Doc! Yes Ive tried em all too! Im looking fwd to this Ketamine treatment and wish I had a personal masseuse able to rub my neck and occipitals every day! Oh if only I had the money to treat myself better. So many variables involved in this shitty life in pain, and I honestly can see why some choose to take the final way out - not saying its the only way out of course!

Thanks for listening to my rant and perhaps someone knows this matter of having the vicious cycle of pain as I do? Anyone with such issues is very much requested to contact me somehow thru PM please? Thank you all so much and I truly wish you all a very Merry Christmas my friends!

Semper Fi,

Gunny
Gunny Fitz is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (12-20-2014)

advertisement
Old 12-24-2014, 12:47 PM #2
Gunny Fitz's Avatar
Gunny Fitz Gunny Fitz is offline
Member
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Gunny Fitz Gunny Fitz is offline
Member
Gunny Fitz's Avatar
 
Join Date: Nov 2014
Location: NOVA
Posts: 110
8 yr Member
Default

Well. I guess if I let things like absolutely NO Replies really get to me then I'd certainly have more issues than just the long list I started above! (lmfao!)

How does one go about having a thread removed here? I looked around thru the User CP but couldn't find anything of the sort on there. Perhaps I will try just deleting all the words in it, but then I get the auto response saying "Post too Short" lol. I will surely figure it out before the year ends now! HAR HAR HAR!

Merry Christmas to all, and to all a good night!

Gunny
Gunny Fitz is offline   Reply With QuoteReply With Quote
Old 12-24-2014, 02:57 PM #3
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Lara Lara is offline
Legendary
 
Join Date: Sep 2006
Posts: 10,984
15 yr Member
Default

G'day Gunny,
Don't go worrying about having no replies. It happens to all of us from time to time. I remember at one time thinking I was a thread stopper.

I think sometimes people just don't know what to say in response, or they don't have the answers to the questions. It's not personal in any way.

I am sorry you're in so much pain.

Someone else just suggested to me to keep a journal of my migraine type symptoms. I think that's a very good idea and you might find that helpful as well.

you take care there.
Lara is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
PamelaJune (12-25-2014)
Old 12-24-2014, 06:51 PM #4
EnglishDave's Avatar
EnglishDave EnglishDave is offline
Magnate
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
EnglishDave EnglishDave is offline
Magnate
EnglishDave's Avatar
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
8 yr Member
Cool Smirk Ketamine Infusion. Yes!!!

Hey, Gunny,
First, don't worry about getting no replies for a couple of days, it is the Holidays after all.
As for your first post I am a strong supporter of infusions - I have half a litre of Lidocaine every 4 weeks - and oral Ketamine is my life-saver. My Pain Consultant, a working Anaesthetist swears by it, as does research when teamed with opiate pain killers.
No-one should be left in severe pain, especially when it has been caused as yours has, but you are definitely on the right treatment track. Just don't expect any improvement in the headaches unless they are referred pain from your neck.
With all the best for the Christmas Season.
Dave.
EnglishDave is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-02-2015)
Old 12-26-2014, 06:41 AM #5
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Porkette Porkette is offline
Senior Member
 
Join Date: Aug 2006
Location: NY
Posts: 1,200
15 yr Member
Default

Hi Gunny,

First I want to thank you for serving our country! If I may ask have you seen a neurosurgeon at all? If not see one and try getting steroid shots if you haven't yet. This will kill the pain for 2-3 months. Another thing you can do is have ultrasound therapy done and it doesn't hurt at all. The therapist will put a clear cream on your skin and then put a ultrasound device around the area where you are feeling pain and this kills the pain for a few days. I had it done when I had back and neck injuries from a car accident. Try taking vitamin B12 1000 mcg. once a day the B12 helps calm the nerves and it works great for me for my back and also my seizures since I have had epilepsy.
You mentioned that you don't notice much of this pain until it's later in the day what you may need is just more light and that in turn gives off serotonin. I found this out from my Dr. because I have more seizures in the fall and winter than in the spring and summer when there's more light and serotonin. I know it sounds crazy but give it a try and sit around bright lights later in the day and see if that helps. I wish you the best of luck and May God Bless You!

Sue
Porkette is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Gunny Fitz (03-02-2015)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Can you have MS with no apparent lesions on an MRI? kristen8283 Multiple Sclerosis 39 03-31-2010 09:24 AM
Hidden disabilities call for as much empathy as those easily apparent BobbyB ALS 0 11-07-2007 07:46 AM
apparent death of braintalk 1 WmM3 Community & Forum Feedback 137 09-17-2006 09:50 PM


All times are GMT -5. The time now is 04:51 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.