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Old 03-15-2008, 08:58 AM #5
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
pono pono is offline
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Join Date: May 2007
Posts: 270
15 yr Member
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I've had migraines since kid-didn't have name for these awful debilitating epsides for many years into adulthood...

Accidents w/ TBi (Traumatic Brain injurys) injured cervical spine & casued more ""different" head aches/pain --
some DX I've gotten in past 10 yrs-- Cervical dystonia, Occipatal Neuralgia, "complex" or complicated migraine.

also episodes of cluster headaches {these are BAD, understand why called suicide headaches, as horrible as Migraines these are worse..

other "mixed" headaches--combinations of various headaches & pains, often severe & debilitating, occuring daily since another TBI last year. .
[ may elaborate on these later but trying to keep this brief now]

I've tried many meds --Rescue types like Fiorect, TRIPTANs (learned i can't take due to Raynauds] and more RX, OTC, homeopathic, and more

also several Prophylatics --AED's-Topomax, Zonegran -did help for awhile but for some reason after TBI caused side fx.
some DRs focused on spasms & treated w/ antispasmodics, some tried antidepressants, & other types of drugs
I can't recall ALL tried... too many over years... as well as trips to ER...
got RX Toradol IM w/ instruction on toxicity & how to give injection as alternative to going to ER. that is still in my first aid kit. --reserved for the worst...

Injections (Nerve blocks) of Sarapin & Lidocaine helped but duration of relief varied from few weeks to few days....
like other chronic headache suffers, ANY relief desirable...

My neuro felt BOTOX better. I had 1st treatmt 2 mths ago; did help some-not full total relief -- but brought HOPE -perhpas w/ more treatmts, more relief & improvements..
But since Botox hit news with Negative stories . ..
and questions .....

my heart goes out to all suffering


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