Go Back   NeuroTalk Support Groups > >

Headaches - uncertain type, don't know where to go from here

Reply
 
Thread Tools Display Modes
Old 01-20-2016, 02:56 PM   #1
pinkswede17
Junior Member
 
Join Date: Jan 2016
Posts: 16
Default Headaches - uncertain type, don't know where to go from here

My introduction post goes more in depth, but, in short, I had a closed head injury in 2006 resulting in a frontal lobe contusion that seemed to heal appropriately, however triggered depressive symptoms. Then in 2013 I had strep that tracked to my spine and I got osteomyelitis of my Cervical spine, epidural abscesses, meningitis and abscesses in the lower part of my brain. I had multiple laminectomies and a C1-C5 fusion as well as a craniectomy and they removed part of my cerebellum (lower part of brain, behind the brain stem). Since the surgery I've developed a post-craniectomy neuroma (basically nerve tissue entrapped within the scars) and pretty significant headaches.

I did get migraines most of my life, but they weren't common and responded to triptans. These are far worse than any migraine I ever had and respond to absolutely nothing. The only thing that works is knocking me out until they go away, which can take a couple days. They're not consistent with migraine symptoms or cluster headaches. Last one I had a couple days ago, I tried everything recommended for headaches - I took Benadryl, Compazine, toradol injection, ibuprofen, relpax, Imitrex injection, prednisone, Neurontin and a couple oxycodone. They did nothing. When these happen, my head hurts to the point that after 24 hrs or so of agony, I've honestly considered taking my own life (and I'm not in any way suicidal on a normal basis, I do have depression, but it's well controlled).

Can anybody relate to his. Does anybody have any recommendations? I'll try anything at this point. They don't happen often, maybe every two weeks, with my usual baseline 5/10 headache daily. But when they do, they're so, so bad. They're interfering with every part of my life. I'm kind of at a lost of where to go from here.

I'd appreciate any feedback anyone has.

Thanks in advance.
pinkswede17 is offline   Reply With Quote
"Thanks for this!" says:
PamelaJune (01-23-2016)
Old 01-20-2016, 06:56 PM   #2
EnglishDave
Magnate
 
EnglishDave's Avatar
 
Join Date: Dec 2014
Location: Yorkshire, England
Posts: 2,098
My Mood: Headaches - uncertain type, don't know where to go from here
Cool Smirk

Hi Pinkswede,

Please, please talk to someone, go to the ER or call a Crisis Line if those dark thoughts arise. I do know what it is like to suffer severe, debilitating headaches, my chronic Cluster Attacks are hitting every morning again at the moment. This is despite the Topiramate. Painwise, they don't remain on the Chart, it's worse than my TN.

All I can offer you is my sympathy and understanding as a kindred spirit of sorts. These pains really do drag you down, but you can expect periods of relief sometime.

Hang in there.

Dave.
__________________
You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

The Sage - Emerson, Lake & Palmer.
EnglishDave is offline   Reply With Quote
"Thanks for this!" says:
PamelaJune (01-23-2016)
Old 02-03-2016, 10:29 AM   #3
Violet123
New Member
 
Join Date: Feb 2016
Posts: 3
Default Botox

Have you spoken to anyone about Botox shots. I get 20 of them every 3 months along with colonipin for the facial pain.
Violet123 is offline   Reply With Quote
Reply

Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off


Similar Threads
Thread Thread Starter Forum Replies Last Post
Uncertain and Uninsured tigerfan95 Dentistry & Dental Issues 1 12-20-2014 04:39 PM
PCS Tension type Headaches Vestibular Therapy cb2188 Traumatic Brain Injury and Post Concussion Syndrome 12 09-13-2014 10:51 PM
uncertain ginnie Spinal Disorders & Back Pain 11 08-14-2010 07:30 PM
uncertain ginnie New Member Introductions 10 08-14-2010 03:17 PM


All times are GMT -5. The time now is 12:24 AM.
Brought to you by the fine folks who publish mental health and psychology information at Psych Central Mental Health Forums

The material on this site is for informational purposes only, and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider. Always consult your doctor before trying anything you read here.


Powered by vBulletin • Copyright ©2000 - 2019, Jelsoft Enterprises Ltd.
Search Engine Optimisation provided by DragonByte SEO v2.0.31 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2019 DragonByte Technologies Ltd.

All posts copyright their original authors Community Guidelines Terms of Use Privacy Policy