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Headaches - uncertain type, don't know where to go from here

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Old 01-20-2016, 02:56 PM   #1
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Default Headaches - uncertain type, don't know where to go from here

My introduction post goes more in depth, but, in short, I had a closed head injury in 2006 resulting in a frontal lobe contusion that seemed to heal appropriately, however triggered depressive symptoms. Then in 2013 I had strep that tracked to my spine and I got osteomyelitis of my Cervical spine, epidural abscesses, meningitis and abscesses in the lower part of my brain. I had multiple laminectomies and a C1-C5 fusion as well as a craniectomy and they removed part of my cerebellum (lower part of brain, behind the brain stem). Since the surgery I've developed a post-craniectomy neuroma (basically nerve tissue entrapped within the scars) and pretty significant headaches.

I did get migraines most of my life, but they weren't common and responded to triptans. These are far worse than any migraine I ever had and respond to absolutely nothing. The only thing that works is knocking me out until they go away, which can take a couple days. They're not consistent with migraine symptoms or cluster headaches. Last one I had a couple days ago, I tried everything recommended for headaches - I took Benadryl, Compazine, toradol injection, ibuprofen, relpax, Imitrex injection, prednisone, Neurontin and a couple oxycodone. They did nothing. When these happen, my head hurts to the point that after 24 hrs or so of agony, I've honestly considered taking my own life (and I'm not in any way suicidal on a normal basis, I do have depression, but it's well controlled).

Can anybody relate to his. Does anybody have any recommendations? I'll try anything at this point. They don't happen often, maybe every two weeks, with my usual baseline 5/10 headache daily. But when they do, they're so, so bad. They're interfering with every part of my life. I'm kind of at a lost of where to go from here.

I'd appreciate any feedback anyone has.

Thanks in advance.
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PamelaJune (01-23-2016)
Old 01-20-2016, 06:56 PM   #2
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My Mood: Headaches - uncertain type, don't know where to go from here
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Hi Pinkswede,

Please, please talk to someone, go to the ER or call a Crisis Line if those dark thoughts arise. I do know what it is like to suffer severe, debilitating headaches, my chronic Cluster Attacks are hitting every morning again at the moment. This is despite the Topiramate. Painwise, they don't remain on the Chart, it's worse than my TN.

All I can offer you is my sympathy and understanding as a kindred spirit of sorts. These pains really do drag you down, but you can expect periods of relief sometime.

Hang in there.

You and I are yesterday's answers,
The earth of the past come to flesh,
Eroded by Time's rivers
To the shapes we now possess.

The Sage - Emerson, Lake & Palmer.
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PamelaJune (01-23-2016)
Old 02-03-2016, 10:29 AM   #3
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Default Botox

Have you spoken to anyone about Botox shots. I get 20 of them every 3 months along with colonipin for the facial pain.
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