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06-30-2011, 06:03 PM | #1 | ||
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Junior Member
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Has anyone else ever felt very self conscious about having Hydrocephalus? Has anyone ever used it against you or hurt you mentally for having it that you feel like you have no hope in finding anyone who will accept you. As I am getting older I am feeling more and more self conscious about having hydrocephalus and the scars on my body because people ahve made fun of me for them in the past and I am finding it harder to accept it even though I have had it all my life. I have had people come up to me and ask what was up with the scars on my body and I explain it to them and then they laugh at me and keep laughing at me. Ive also ahd people come up to me and say things like you better stick with your sister all your life after your parents drop dead otherwise if your sister leaves you you will crash and burn and wind up in either a retirement hime or an insane asylum because you are not mentally stable enough and that because you have a shunt in your head you are the broken twin. These incidents have happened since my last revision 12 yaers ago and I find it hard to let it go and the last incident happened in april of this year. Anyone have any advice on how to get over this fear of being rejected or made fun of?
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07-01-2011, 06:33 AM | #2 | ||
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Junior Member
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First of all, if you're around people that make those kinds of comments, stop hanging around those kinds of people. Secondly, I've had multiple revisions since the age of 9 and I'm 44, with my last being 9/2008. I put up with comments like that when I was maybe in grade school, but since then, they have stopped. You sound like you could be your own worst enemy here, and that, you're either exxagerating or even imagining most of those comments as a way to reinforce your own feelings of isolation. We all (hydros) have them. The best advice I can give you is to stop focusing on the negative aspects of your life, stop comparing yourself to your twin, get a new set of friends and acquaintances and learn to appreciate that about you which is good and unique. Do not use this disease as a crutch to become a victim. Get on with your life. Take charge!
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"Thanks for this!" says: | ideebaby (07-27-2012) |
10-21-2011, 05:18 AM | #3 | ||
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Junior Member
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In terms getting friends, outright(as opposed to getting a new set of friends), I have always found it hard. Because once they see my head and/or, hear about my hydrocephalus, people will usually ignore me, like I am somehow contagious and/or infectious without caring to hear why I have it, and what it isn't. |
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11-14-2011, 11:44 AM | #4 | ||
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11-17-2011, 12:41 PM | #5 | ||
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11-28-2011, 11:51 AM | #6 | ||
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07-01-2011, 06:34 AM | #7 | ||
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Junior Member
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And if a stranger comes up to you and asks, "What are those scars?" tell them 'none of your ** business"
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07-02-2011, 04:33 PM | #8 | ||
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Junior Member
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I was never comparing myself to my sister. Someone else brought that up on their own which completely suprised me. Those people who have said things like that about me behind my back I have long stopped talking to but the feelings are still there because of the fear that it may happen again.
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07-05-2011, 05:03 AM | #9 | ||
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07-05-2011, 11:51 PM | #10 | ||
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Junior Member
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What people have said to you about your scars is "ignorant" I am deaf in one ear and believe it or not I have been told by ignorant individuals "You don't look deaf" How does one look deaf? Our scars and the rough road we have traveled are what makes us who we are today, the fact that you are here makes you very special! But it can be hard to forgive ignorance
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