What symptoms did you have at diagnosis (for those diagnosed after they were an infant), and what symptoms do you have before you know you need a shunt revision? In particular, do you feel that you see extra large halos/ fuzz around lights at night or that its particular bothersome?

My story is different. I was diagnosed at 18 during my first semester of college (Fall 2010). I was always an honors student. When I started college I was commuting, and somewhere in the middle of the semester I started getting these weird headaches around the same time every day, as I was walking to my car. As time went on, they would get more frequent and I would get dizzy too. I thought I was hypoglycemic, so I would eat every few hours. I even told my mom and several friends I thought I needed to see a doctor for the dizziness problem from now eating (I was eating plenty - I gained 10 pounds). I also felt what I could only describe as brain fog - not being able to think clearly as usual and just seeming not completely there.

Well, I decided to transfer schools at the end of that semester. I drove up at the end of the semester with my mom for orientation and then I stayed with my friend for another week. The night before my mom left (around Dec 5th) I drove back from dropping her off at the airport and realized my vision was very fuzzy. I also felt the brain fog and a headache. When we drove back from FSU to my house that night (Dec 10th) we decided to go at night, and all I can remember is having a headache the whole way and the oncoming lights and street lights really bothering me. They seemed really big and I think I remember seeing halos around them.

Dec 11th I went to the doctor. He took one look in my eyes and told me I needed an MRI. Diagnosed with obstructive hydrocephalus and had an ETV in February. The papilledemma tipped off my first doctor.

Had relief of headaches for a few months now I get them again.

Now I'm getting them increasingly. I also feel that I see halos and stuff around lights but my mom keeps telling me it's normal. I can't remember what's normal though!!!

I have an appointment with my neurologist tomorrow so we'll see how it goes. Hoping for no more surgery but wishing I had an answer as to my constant headaches and weird vision problems (if it is a problem).

From what I understand, No two people's symptoms are exactly the same. I have spoken to a number of hydro patients and I am yet to hear two identical stories. Each has had their own 'lead up' and symptoms and trying to compare is very difficult to near impossible. There are different causes of hydro be that a growth, an abnormality in brain structures, a narrowing of the aqueduct, a blood clot, a brain injury etc. All of these can cause a build up of CFS but the point where the pressure is increased on the brain may differ for each and therefore so may the symptoms.
Personally, for years I was trying to tell people something was a miss. I was told I was everything from a hypochondriac to mentally unstable. It was not until I had a physical manifestation that things were investigated. One day driving down the road the lights went out and I could not see. Scared the daylights out of me. The wife took me to see Dr, had a scan and BINGO. That was '96, I had been having strange sensations ie visual fuzziness, auras, intense eye pain, 'wooshing' in my ears when I walked, tingles in my hands and feet, AWFUL AWFUL headaches. But I was told 'we've operated, that's as good as it gets'.
At the end of January I started having dizzy spells then a couple of days later started vomiting and the headaches were chronic. The wife called an ambulance and I was rushed to hospital. So far this year I've had 3 surgeries and things still are not good. None of my symptoms are anything like previous other than the headaches, but after each operation they headaches have altered and not for the better. My pain was primarily in my right eye, now my pain is in both eyes and the bridge of my nose radiating back into my head. The hospital nurses wanted a pain rating out of 10. 10 being the worst pain you have ever felt , I rated this at 15. Like a bolt being shot from the back of my head out through my eyeballs. The nurse would not believe I was in this much pain.
Pain is very subjective and until you have actually been in that amount of dis comfort it is difficult to explain, but the last thing you want to hear from a nurse is '...oh it can't be that bad....' I'm lying in bed in the foetal position, clutching my head and she thinks ...it can't be that bad....

You are doing the right thing, going back to the neuro's and getting a professional opinion, but I'm sorry to say you may find that this is your new normal. I hope for your sake that they can figure something out but be prepared, this maybe your new 'Normal'. It has been for me, unfortunately.
Merl1n