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#1 | ||
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Junior Member
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I am a 46yr.-old male with congenital hydro from the U.S.. I have a friend(31yr.-old female) in British Columbia, that was first shunted around July 4, 2012. Recently(within the last couple or weeks), She has been having intermittent headaches. She told me at one point, on a scale of 1-10, they were as bad as, an 8. Her headaches supposedly went away about 48hrs. ago.
But going on my personal experience with congenital Hydro, and her attributing her headaches to stress(she n' her boyfriend/fiance of four years separated about two months ago), I am not entirely convinced that her headaches are from stress. Any feedback would greatly be appreciated. Last edited by lcms0516; 01-18-2014 at 10:09 PM. |
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#2 | ||
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Junior Member
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In my opinion, play it safe. See a Dr, get a scan. If its all clear, its all good. If it needs follow up, at least she knows. I have NOT done this and ignored symptoms 'cos I was busy, didn't have time, couldn't be bothered and every other excuse known to man. This has caused more significant symptoms which, in one case, was cause for a collapse at work and ambulance to hospital. I knew something was wrong but pushed it aside and continued until my body said "no".
Since my last revisions, Jan and Aug 13, things have not improved. I may have left things a bit long this time and actually done more damage by not getting it seen to earlier. Now the dr's say its just recovery pain, but 5-6 months should be enough IMHO. And I'm not very patient when it comes to pain. I WANT IT RIGHT AND I WANT IT RIGHT NOW ![]() ![]() So, Play it safe, get a scan would be my advice. The sooner she knows the safer it will be for everyone involved Merl1n |
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#3 | ||
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Member
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If it is due to an intermittent blockage, a scan may not help unless she is so lucky as to get the scan at just the right time (has never worked for our kid, really a pain). Definitely encourage her to raise intermittent shunt troubles as a concern to her neurosurgeon and ask them how they'd like to follow up. And maybe call them every time it happens (and track them on a calendar to see if there are other patterns). Someone on hyceph-l may have a better suggestion.
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#4 | ||
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Junior Member
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Quote:
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#5 | ||
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Junior Member
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Quote:
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#6 | ||
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Member
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Best you can do is encourage her to find a new surgeon. You aren't your friend's keeper. I wouldn't get all wrapped up in drama if the person doesn't want your input.
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#7 | ||
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Junior Member
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#8 | ||
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Member
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Yeah, seems to me this isn't the first time you have been not listened to (there was a lot of relationship drama with either the first shunt or a revision unless you never posted to one of the other mailing lists). Trying to *make* someone listen frequently causes them to dig in more, not less. Respecting another person's boundaries is the better response, not otherwise.
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