Hi, I know this tread is from a long time ago, but I was wondering how everything turned out for you? Did you or did you not end up having hydrocephalus? Our stories are very similar. I am 34 years old, been ill more than 10 years, I have POTS (and cfs/me) and on a recent MRI they found hydrocephalus, suggestive of NPH (and also partial agenesis of the corpus callosum). Since the neurologist could't really say much about it other than it's probably congenital and might explain my cognitive symptoms, I'm having a second opinion, but thats months away. So if you should happen to see this and want to reply, that would awesome.
Kind regards,