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#1 | ||
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New Member
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Hey. If u really want to know, Ive had Hydro all my life, was diagnosed as having it at the age of 20, but didnt get a shunt put in for a few months after it had been discovered.
Constant tiredness, always sleeping hen I wasnt working, Id fall asleep wherever and whenever I rested my head. Obviously I had no life as I was always too tired to do anything. Peopel were always on at me. I had a very weak bladder, if I was on the street Id wet myself before making it to the toilet, even when I was at home sometimes. Also sometimes I didnt want to get up to go toilet so Id wait until it was nearly too late. When things got worse I had constant dizziness everytime I got up and walked. I had to hold onto a lampost to regain balance, or even just sit on the street because I felt too tired to walk. Because I had to wait so long for the op Im now partially sighted. However now Im treated, Im on my 2nd shunt already as the 1st 1 like ur didnt work, and Im living every day to the full as I can whereas I couldnt before, and Im loving it. I do sometimes think Id rather be dead than have to worry about my shunt and Hydro, I worry about it everyday and get over-paranoid, but as long as Im alive Im going to keep living and will accept any treatment the specialists offer. I think you should do the same. Get treated and then live, living with untreated Hydro was the worst thing and most embarrasing thing ever and I really didnt care if I died in the operating theatre or not I was that bad. Sorry for the long reply but I want to make it clear how much difference it makes having a working shunt put in. |
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#2 | ||
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Junior Member
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Unfortunately the only option for treating a blocked shunt is surgery. I know it is a nuisance, and no one really "likes" it, but it is a necessity if you want a chance to live
![]() ![]() I know it is difficult - I have had two surgeries within 8 months, and two surgeries within 11 months on two different occasions, having had 6 replacements in all. I have now had my current shunt just over 7 years ![]() It is a matter of just plugging on, and eventually things will settle down. Good luck! Nat. ![]() |
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