I have chronic Lyme disease, so I just wanted to start a thread where I could post helpful information about Lyme disease. Any replies would be welcome too.

This is an article which provides some good general information on Lyme disease - Diagnostic Hints and Treatment Guidelines for Lyme and Other Tick Bourne Illnesses. Here are some excerpts:

From Introduction:
To me, "Lyme Disease" is not simply an infection with Borrelia burgdorferi, but a complex illness potentially consisting of multiple tick-derived co-infections. In later stages, it also includes collateral conditions that result from being ill with multiple pathogens, each of which can have profound impact on the person's overall health. Together, damage to virtually all bodily systems can result. In addition, it is possible to see latent infections reactivate, especially viruses of the Herpes type.

From Background Information - General Measures:
Magnesium deficiency is very often present and quite severe. Hyperreflexia, muscle twitches, myocardial irritability, and recurrent tight muscle spasms are clues to this deficiency. Magnesium is predominantly an intracellular ion, so blood level testing is of little value. Oral preparations are acceptable for maintenance, but most need additional, parenteral dosing: 1 gram IV or IM at least once a week until neuromuscular irritability has cleared.

From Lyme Disease Treatment Guidelines - Piroplasmosis (Babesiosis):
Piroplasms are not bacteria, they are protozoans. Therefore, they will not be eradicated by any of the currently used Lyme treatment regimens. Therein lies the significance of coinfections- if a Lyme patient has been extensively treated yet is still ill, suspect a piroplasm.

From Lyme Disease Treatment Guidelines - Course During Therapy

It has been observed that symptoms will flare in cycles every four weeks. It is thought that this represents the organism's cell cycle, with the growth phase occurring once per month. As antibiotics will only kill bacteria during their growth phase, therapy is designed to bracket at least one whole generation cycle. This is why the minimum treatment duration should be at least four weeks. If the antibiotics are working, over time these flares will lessen in severity and duration. The very occurrence of ongoing monthly cycles indicates that living organisms are still present and that antibiotics should be continued.


http://www2.lymenet.org/domino/file.nsf/UID/guidelines

I would like to make one comment. The author of this article observes that "it is possible to see latent infections reactivate, especially viruses of the Herpes type." I wonder if latent infections such as measles and chicken pox could also be reactivated and cause some of the skin rashes that can occur with Lyme disease.

Here is an eye problem that seems to be caused by Lyme disease. I know that specialized scans show that I have a thinner, larger than normal "cup" where the optic nerve attaches to the retina. My optometrist says that because of this, I am borderline glaucoma even though the intraocular pressue in my eyes is well within normal. Is it possible that this problem is being caused by Lyme disease which causes increased intracranial pressure? I'm waiting to hear back from my optometrist.

I wonder if a lesser amount of increased intracranial pressure (not enough to cause persistent headaches, but chronic) causes the tinnitus that is often associated with Lyme disease. And where does this increased intracranial pressure come from? Is it an inflamation due to the bacteria, or could it be caused by increased muscle tension along the jaws, neck and spine, or both?

http://pediatrics.aappublications.or...ull/112/6/e477

Here is some good information about Lyme disease and dogs. This article contains a very good description about the deer tick and it's involvement in Lyme disease.

http://www.marvistavet.com/html/body_lyme_disease.html

Reasons for the Survival and Persistence of Lyme Disease Bacteria (cystic forms, blebs, L-forms, etc.) -
A Bibliography with Highlighted Full Abstracts

Could the following researchers have discovered reasons for the survival of the Lyme disease bacteria in some patients even though seemingly adequate antibiotics were used for treatment?

http://www.geocities.com/HotSprings/...e-reasons.html

I don't think it is good for Lyme disease sufferers to consume alcohol. This was Wildcondor's experience (See the link to Wildcondor's story on my post to the Lyme Update Thread) This is my experience. I have been getting better for the past 8 days or so using sea buckthorn in addition to my regular supplements. Last night I had about 9 ounces of wine (Being gluten intolerant, having a couple of glasses of wine on Friday evenings is a special treat). This morning, the numbness on the left side of my face was definitely worse that the day before.

It makes sense. Among other things, Lyme disease produces neurotoxins that are bad for your brain, your nerves and your liver. Alcohol is also a neurotoxin that is bad for your brain, your nerves and your liver.

I guess I will just have to give up alcohol in addition to gluten and dairy

The Dirty Truth About Lyme Disease Research:

http://www.angelfire.com/biz/romarka...Lymetruth.html

Here is a site that has a lot of good information about Lyme Disease (also a lot about caring for reptiles and amphibians if that's your interest):


http://www.anapsid.org/lyme/

Hi - I'm new here and I have a question. Has anyone with chronic lyme had burning in their head? I have had a nerve conduction test and doc says I have small nerve fiber neuropathy. I also have burning that kind of flicks around anywhere on my body. Been tested for lyme a few times and waiting to here again if I have it.