I have a 13 year old who has just spent a year with burning/stabbing lateral thigh pain before she had a diagnosis of Meraglia Paresthetica. We are considering the radiofrequency ablation at the University of Michigan. But the doctor had us try a topical nerve block first, which is a compounded mixture of lidoderm, nuerontin and an antiimflamatory. It is like a miracle cure right now. It has completely numbed her nerve pain. SHe had been so disabled by this pain over this last year but now she is rarely in pain and is weaned off lyrica and other pain meds.
I can post the exact coumpound so others can research or ask their doctors about it if requested.
It has been 5 weeks and we no longer are in need of getting the ablation. The Ann Arbor pharmacy said this coumpound can be used for a long time with no complications. Only a little of the actual medicine is actually absorbed so there are little side effects.
My daughter developed MP after fracturing her pelvis a year ago doing the splits. THe injuried leg was the leg that went backwards injuring this nerve.
KC

I realize that this is a few years late, but if you could post the pain compound I would be extremely grateful. (and an update on your daughter's experience).
I wrote a book about my MP experience and lots of people write asking for exactly what you describe!

Please let me know the compound mixture and is her relief still present?

Hi sidster,

I know you are searching for help, advice, and responses from people that have tried various treatment modalities for MP.

This is an old thread and the people from whom you are requesting their experiences and outcomes have not posted in several years and only had a few posts even back then.

Little KC had only that one post and thunderdog4 only posted twice.

If you look at the left of the blue bar at the top of a post, it will show you the date the person made the post. You can also see how many posts someone has made if you look at the left side of the post.

If someone has only posted once or twice and that was 3 to 4 years ago, there is little chance they will respond.

There are only a few MP people that are still active on the forum.

I don't want you to feel abandoned when you do not get responses to your posts from the specific people to whom you have asked questions.

Wishing you the best and I will be happy to help you in any way I can.