[Hopeless]

Originally Posted by DebbieK

Hello Hopeless and or other sufferers:
My 24 year old daughter has had a numbness tingling in her thigh since she was
8 years old.Into her teen years we tried over and over to get to the cause but it was not hurting and very off and on.Last year the pain started a nd so do sdf our search for help and a diagnosis.Went to as neurologist knew right away it was
M.P Glad to have a name for the condition but it's been a merry go round of nuerontin Lyric a Tegretol cortisone injection,pain patches and a nerve block in her lumbar region to try and reach the nerve that way. Neurologist says not a candidate for surgery as well as orthopaedic doctor say no point in surgery. Have read that in rare cases surgery can help. She is age 24 not over weight and not diabetic.SHe is so depressed from th he pain and feels defeated.please any help or adviCE.We feel alone and lost.Thank you, Debbie K

Hi Debbie K,

I am so sorry to hear what you and your daughter have been through in your quest to find answers. Yes, it is great to finally have a diagnosis and a name but you also need to find relief. I, too, began with it off and on, when I was in my twenties so I can certainly relate to what is going on in your daughter's life. (I am now in my sixties.) It took decades for me to get the "proper" diagnosis. As far as treatments once I finally got a diagnosis, I have been through the gambit. As far as surgery, I believe it should be a LAST resort. You mentioned various treatments attempted and I have a question regarding one of them. Exactly "where" was the cortisone injection done anatomically? Did they do an ultra-sound guided injection into the LFCN? There is also a procedure called radio-frequency ablation that can be done if injections into the LFCN do not help.

After many years of intermittent pain, my MP had progressed to constant pain at which time I was willing to try anything. In many cases, MP will resolve on its own as you have probably read in your research of the topic. But for the ones that it becomes a chronic lifelong problem, finding the right treatment is our only hope. It can become debilitating so I hope for your daughter's sake, she can find the proper help NOW.

Please keep us informed. We are here to listen and help in any way we can.

If other treatment modalities have not worked, she might want to consider having a direct nerve block into the LFCN. Good luck and looking forward to hearing from you again.

Hopeless