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-   -   Myoclonic (https://www.neurotalk.org/movement-disorders/126198-myoclonic.html)

music girl 06-11-2012 09:34 PM

Quote:

Originally Posted by music girl (Post 888122)
Sorry to hear about your myoclonus.

My jerking that started in 2005 later affected both legs, arms, neck and my spine.
The first medication to help with my jerking was KEPPRA! MIRACLE Medication.

Extreme heat, cold, exercise or stress can trigger it for me.
So stay out of the heat!

In 2005 I had a test for seizures however that was negative.

I became worse about 1.5 years ago they did another scan for Epilepsy and found that I have Epilepsy. I believe they call it PME Progressive Myoclonus Epilepsy.

I am now on LAMICTAL for Epilepsy this has helped with the headaches and the jerking.
My BEST ADVISE IS TO GET A COPY OF ALL OF YOUR MEDICAL TEST RECORDS that you have done!

I still have problems with extreme fatique, I have tried B12 shots, etc.
I did see in the Mayo clinic news that 1000 mg of American Ginseng can help with fatique in cancer patients. I tried it and it seemed to help a bit.

STAY AWAY FROM PROVIGIL or any medication used for narcalepsy. My MD tried that. I used that medication for 1 day and my jerking was worse for about 4 days.
My Neurologist said to stay away from those medications.

music girl 06-11-2012 09:41 PM

[QUOTE=panghal82;881516]Hello,

First thanks for sharing your concern ...
I am 30 years old female and from last 2 weeks , I am facing severe headache, memory loss, fatigue and at times feel shocks in hands and legs.

Today I got my B12 report and the levels have dropped further to 224 pg/ml and increased MCV and RBC counts.
Hb quotient is also on the lower side - 9.5.

I checked with my doctor ( Neurolosit) and he was not sure what can cause the Myroclonic jerks which I feel quite often.
My hands start jerking momentarily and feel shocks in upper part of the body.

I also feel uneasiness .


Any ideas will really help..

Please help!!!

Regards,
Panghal[/QUOTE
memory loss

music girl 06-11-2012 09:48 PM

[QUOTE=music girl;888130]
Quote:

Originally Posted by panghal82 (Post 881516)
Hello,

First thanks for sharing your concern ...
I am 30 years old female and from last 2 weeks , I am facing severe headache, memory loss, fatigue and at times feel shocks in hands and legs.

Today I got my B12 report and the levels have dropped further to 224 pg/ml and increased MCV and RBC counts.
Hb quotient is also on the lower side - 9.5.

I checked with my doctor ( Neurolosit) and he was not sure what can cause the Myroclonic jerks which I feel quite often.
My hands start jerking momentarily and feel shocks in upper part of the body.

I also feel uneasiness .


Any ideas will really help..

Please help!!!

Regards,
Panghal[/QUOTE
memory loss

I too have the memory lapses, short term memory issues.
My Neuro told me not to drive unless it is close to home and I know where I am going.
I have had some issues in the last few months getting forgetting how to get to locations that i should know where they are. that is scary.

I have the hand tremmors, my hands go numb and tingly at night.

My sister has some of the symptoms that I have they diagnosed her with MSA Multiple Systems Atrophy which is a form of potts disease.

Anyone interested can look at www.dinet.org


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