Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).

 
 
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Old 09-26-2006, 01:15 AM #4
WonderBoy WonderBoy is offline
Junior Member
 
Join Date: Sep 2006
Posts: 15
15 yr Member
WonderBoy WonderBoy is offline
Junior Member
 
Join Date: Sep 2006
Posts: 15
15 yr Member
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hey there rockin4epilepsy,

i wanted to say - i really admire your campaign and your efforts.

your love for your little guy shines so bright.

===========================

i hope you aren't having to cope with movement disorders in your life/your family, etc. too.

my child experiences generalized progressive dystonia and dyskinesia, cerebral palsy, seizures....

he takes artane and prn diazepam/lorazepam. ultimately he may have dbs surgery (deep brain stimulation, similar to VNS but electrodes are implanted deep in the brain). The NS backup plan is to have a baclofen pump implanted.

-wonderboy's mom

Last edited by WonderBoy; 09-26-2006 at 01:22 AM.
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