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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).

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MS or Multiple System Atrophy - really need comfort

 
 
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Old 10-02-2015, 01:38 AM #8
mvrsports mvrsports is offline
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Join Date: Sep 2015
Location: New South Wales, Ausstralia
Posts: 4
8 yr Member
mvrsports mvrsports is offline
New Member
 
Join Date: Sep 2015
Location: New South Wales, Ausstralia
Posts: 4
8 yr Member
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MSA sucks. I am lucky I suppose in that I actually work for Disability Employment Service provider..hey if they can't keep me working as long as possible...who can?
I'm just afraid that I am degenerating faster than friends and family realise. Perhaps they think they are cheering me up by pretending things are not as bad as they are.
I'm not looking forward to the end, not for me, but I don't want my daughter to see me when I can no longer look after myself. She turned 8 just the other day.
I wonder how many more of her birthdays I will see?
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