Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS).

 
 
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Old 10-03-2015, 09:44 PM #10
mvrsports mvrsports is offline
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Join Date: Sep 2015
Location: New South Wales, Ausstralia
Posts: 4
8 yr Member
mvrsports mvrsports is offline
New Member
 
Join Date: Sep 2015
Location: New South Wales, Ausstralia
Posts: 4
8 yr Member
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Quote:
Originally Posted by Lara View Post
I'm very sorry.
That must be so very awful for you and especially with your daughter being so young. That obviously means you are very young as well?

I guess family and friends may be not wanting to face the reality of your illness and that's their way of trying to help. Even though you have your family and friends for support, I was wondering if you see a counsellor who you can talk to about your feelings. I lost my parents very young from other reasons, but 8 year olds understand a heck of a lot more than people realize and in an age appropriate way, she also needs guidance and a certain type of preparation for what is to come.

You take care there.
Hi Janet,
Not so young really. 56 now 55 when first properly diagnosed after a couple of years of being told my symptoms were psychosomatic. (classic age for MSA)
Had my daughter later in life when I remarried. (Best thing I ever did...she brings me so much joy)
I had always said I would not be on old father. My father was older and I always said I would never do that to a kid. I have and I am so glad I did.
I am not seeing a therapist. As I said, work have been fantastic and offered me or anyone in my family access to one. Psychologically I am going OK, although I do find myself googling Australian euthanasia laws from time to time. I'm ok now but I am worried about those around me at the end (euthanasia Illegal in Australia)
She (Daughter) knows my balance and speech will never get better.
Thanks for the kind words.
I'll just keep taking one day at a time.
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