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Movement Disorders Including essential tremor, dystonia and Restless Leg Syndrome (RLS). |
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That is why I wanted awareness raised. Took years before I finally accepted a Functional diagnosis. My drunken walk down the street with neighbours constantly asking if I had Parkinsons, a stroke, MS etc was so embarrassing I stayed in. A FUNCTIONAL diagnosis is equally as relevant and gives hope as a functional condition can at times improve. Not always but is better than a condition that nothing can be done. We just need treated as seriously as any other patient, as I say the condition is VERY REAL. Not just in your head. My group who meet with my neuropsychologist include people who Spontaneously drop to the floor. Have non epileptic siezures Shake uncontrollably to the point they are dependent on a carer to wash/dress and meet all their needs. But this person has a wonderful nature and is articulate on how they feel. Take weakness fits that can last for days and require a wheelchair during this time. FUNCTIONAL CONDITIONS NEED TO HAVE MUCH MORE RECOGNITION AND NOT IGNORED. Good luck for your appointment, neurologists are not all bad but they dont have all the answers either. LOL |
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"Thanks for this!" says: | bluesfan (05-16-2015), St George 2013 (05-16-2015) |
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