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08-24-2009, 05:53 AM
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Junior Member
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I already posted a HI on the new members board but wanted to say HI here too. I've been lurking around for a few months.
I'm not yet diagnosed. Been trying to find anwers since Nov. 08 but so far lots of slight abnormalities but my brain doesn't light up like a Christmas tree so the powers that be (MDs) still don't know what is going on. My PCP thinks MS, my onclologist (I have MGUS) thinks this is MS but the neuro isn't sure...maybe yes, maybe no...more tests to come. Anyway, just wanted to say hi and to thank the whole community just for being here. Gaia |
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08-24-2009, 06:52 AM
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Member
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Quote:
Welcome to the board. Test, test and more tests. You'll get an answer! Take care  Niko 
__________________
"Avoid making irrevocable decisions when tired or hungry." -- Robert Heinlein |
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08-24-2009, 06:56 AM
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Elder
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The hardest part for me was KNOWING something was wrong, and going through the process of eliminating possible causes until it finally narrowed down to MS. You've picked a good place to come for support. No matter what you're feeling, there's somebody here who's been there.
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* * * **My flesh and my heart may fail, but God is the strength of my heart and my portion forever. (Psalm 73:26) |
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| "Thanks for this!" says: | Twinkletoes (08-26-2009) |
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08-24-2009, 07:40 AM
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Elder
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Hello! and welcome
 um what is MGUS?  Have you been to the big MS center in Lebanon NH or the big one near Boston? They are amazing folks. Hang in there.
__________________
RRMS 3/26/07 . Betaseron 5/18/07 . Elevated LFTs Beta DC 7/07 Copaxone 8/7/07 . . |
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08-24-2009, 10:43 AM
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Wise Elder
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Hi Gaia! Welcome to NT.
I am glad to see that you decided to post. I wish you the best of luck on all your tests. Please post and let us know how you are doing and how your testing went. In the meantime, hang in there!
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08-24-2009, 12:10 PM
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In Remembrance
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Welcome Gaia...
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~Love, Sally . "The best way out is always through". Robert Frost ~If The World Didn't Suck, We Would All Fall Off~ |
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09-21-2009, 03:28 AM
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Junior Member
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 WELCOME TO NT this site has helped me out so much i have posted many questions and have gotten great answers. And i'm sorry your going though all of that stuff i hope it dont turn out to be ms or anything serious. GOOD LUCK
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09-21-2009, 08:29 AM
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Magnate
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Hello and welcome.
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sox . . |
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09-21-2009, 09:45 PM
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Magnate
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Welcome to NT! I've been absent as of late, but this change to fall is a huge reminder daily with symptoms that I have this crud called MS.
__________________
2004 to present - Trigeminal Neuralgia 2007 to present - Burning Mouth Syndrome March 2008 - Multiple Sclerosis DX 05/2008 - Relapse 05/2008 to 02/2009 - Copaxone 10/2011 - Relapse - Optic Neuritis developed 9/2012 - Relapse - Balance issues 1 sided 8/2012 - Erythema Nodosum - diagnosed 10/2012, reaction to Topiramate (Topamax) April 7/14 - Raynaud's Syndrome DX |
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09-22-2009, 04:17 AM
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Junior Member
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Still no answers. The MRI (as I posted separately before) was clear of lesions.
PCP still says he thinks I will eventually be dx'd with MS. May just take a while. So...I guess I'll be lurking about here for a while if you all don't mind. Gaia |
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