I had an LP after my MRI of the brain showed lesions. I also had Sensory Evoked Potentials, Vision Evoked Potentials after switching to an MS Specialist who wanted to confirm my diagnosis. I had an EMG too. I think with MS the EMG is usually normal. Mine was. Not to mention loads of blood tests.

You have to remember all the tests you have to have done do send your doctors in different directions because they rule things out. I know how frustrating and scary it is. Hang in there! We're here for you.

When I was first DX with MS, they didn't have MRIs yet so, yes I had a myleogram/LP that showed positive for protien and o-bands and I was then DX.

I'm familiar with PD symptoms. I have quite a bit of involuntary muscle movement sometimes rhythmic in occurrence, and my facial muscles (especially forehead and upper cheek area) are stiff essentially all of the time.

I've had symptoms since last summer; just visual at first with long breaks in between. The episodes of fatigue began last last fall again with breaks in between. In mid-April motor/sensory symptoms and the fatigue and the visual symptoms all become suddenly worse and have continued to worsen since that time.

Thanks,

Susie

I am 'clinically probable MS' due to the fact that I only have one lesion and positive LP and plenty of symptoms.

How often do you have MRIs to check for the presence of new lesions?

Susie

I think Kim's current doc is looking to do this annually, but there are potentially unique reasons for his thinking. One thing for sure, it's a big deal to have comps and to be able to compare them chronologically. I'd highly recommend, brain and spine. If you one day (and I hope you never need to) find your doctor wondering about that spinal MRI in 2009, you can say, "yup, you're in luck, I had one of those". just my opinion. Ken