I don't know if you are on Medicare but my Biogen nurse that calls me every 6 months to see how I'm doing told me that Medicare will pay for my Avonex if I have my show at my Doctors office. Basically the doctors office purchases it and then gives me the shot.

Good luck lil Yabbit. I hope you are able to get some health insurance.

Feel better, friend.

Oooh, this sounds like a box of frogs. I'm so glad I'm not in the U.S.
Having moved from the UK and its NHS which I was confident would take care of me for ever, my Dx in Oz struck the fear of wotsit into me.
Luckily, even without private health insurance, things aren't too bad. my neuro works out a bit costly but my GP is free and my Beta is $30 a month.
Could be worse.

I hope you get the help you need. I can't imagine being in your position. need the treatment but can't get your hands on it...

(((YB))) - I do hope you start feeling better soon.

As for the meds, do you qualify for this program as well as others in your state? http://www.maine.gov/dhhs/oes/hiap/del_exp.htm I know each state has different requirements.

(((Char)))

char,

what a pickle to be in. the previous advice is all good.
i hope you can hook up with a tx. best to nip this in the bud if you can.

thanks for the tip Trish, I am not considered disabled so I don't think I qualify but I will check into it.

Give it a try. You may qualify for other programs in your state.

Additionally, many of the DMD companies offer assistance. You can also see what studies are being done in your area. Some pay for the meds. You also get excellent care. While I was part of a study, they did not cover the Copaxone but did provide the oral steroids. Also, I got great care during that time.

You can also talk to your dr about your situation and see if he would prescribe the LDN for now until you get insurance. Provide as much documentation as you can for him to review and discuss with you. He may be in agreement with it based on your situation.

In the meantime, know that I am keeping you in my prayers.

I'm sorry Char . I might have missed a post suggesting this but have you tried contacting the NMSS? I've connected with a wonderful girl at my local chapter who has been helpful to me in more situations than I can count.

Try to speak with the program director at your local chapter. I really hope they can help you out.

Hugsssssssssssssssss