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Old 09-01-2009, 09:33 AM #4
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Join Date: Jan 2008
Location: Ellicott City, MD
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kicker kicker is offline
Grand Magnate
kicker's Avatar
 
Join Date: Jan 2008
Location: Ellicott City, MD
Posts: 3,834
15 yr Member
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My Neuro won't prescribe LDN as it has no trials performed in USA and side effect may be Euphoria. 4-AP (also used as bird poison and known also as Fampridine - helps some but not me) (Possible side effects of seizure) Well, that has trials in good old USA, so he prescribed for me. Made me tired, disconnected, nauseous, did no positives but never Euphoric thank Goodness (???). He has not (doubt will ever) responded to my e-mail where I said this. Guess I'm off his patient list now. I have health insurance but am PPMS. DH agreed with me when I said I'm done with MRIs and neuros. He says they just say I'm PP, nothing will help, see you in 6 months. Oh no you won't!! I can get LDN without these guys and will. I'll try stuff but refuse to just tread water without trying. You're not letting me try, I want to scream. We don't live in the same world, my last neuro had to google stuff I talked about, maybe having MS and being here has educated me past neuro. If Stem cells prove their worth, etc., of course I'll return to a neuro, but right now I'm done. PP means no steroids for me, just Amantadine and Vesicare. I'm already alone anyway. Rant!!!!
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PPMS, DXed 2002 Queen of Maryland
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