My Neuro won't prescribe LDN as it has no trials performed in USA and side effect may be Euphoria. 4-AP (also used as bird poison and known also as Fampridine - helps some but not me) (Possible side effects of seizure) Well, that has trials in good old USA, so he prescribed for me. Made me tired, disconnected, nauseous, did no positives but never Euphoric thank Goodness (???). He has not (doubt will ever) responded to my e-mail where I said this. Guess I'm off his patient list now. I have health insurance but am PPMS. DH agreed with me when I said I'm done with MRIs and neuros. He says they just say I'm PP, nothing will help, see you in 6 months. Oh no you won't!! I can get LDN without these guys and will. I'll try stuff but refuse to just tread water without trying. You're not letting me try, I want to scream. We don't live in the same world, my last neuro had to google stuff I talked about, maybe having MS and being here has educated me past neuro. If Stem cells prove their worth, etc., of course I'll return to a neuro, but right now I'm done. PP means no steroids for me, just Amantadine and Vesicare. I'm already alone anyway. Rant!!!!

I understand where your neuro is coming from but it's so easy for him to sit there and say those things. He already has health insurance probably through his office and doesn't see the struggle many of us face every day. I think doctors need to look at things from our point of view and have more understanding and maybe some solutions to the problem (lack of insurance). If they don't specifically have the answers, then tell you where you can get them. I'm pretty sure you already know the importance of health insurance and medications that help MS but to get a lecture from your neuro does nothing but upset and depress you. It's not very helpful. (((hugs)))

I think the correct response when your doctor tells you that you should have health insurance is "well, DUH!"

Aw Char... I'm sorry you're feeling yucky. I hope the prednisone helps.

I agree about the insurance suggestion. It doesn't sound like the doctor is in touch with reality. Maybe he is offering you a job with benefits? Or knows of some out there that are readily available? They are few and far between, doesn't he know that?

((((((Char))))))) ...I second, third and fourth Kelly's LDN suggestion.

Don't all of the A, B, C, R drugs have charity programs for people with no health insurance? You should look into that. Better yet, he should have given you info on these programs. I know that I have read on here and other MS boards where people are on these programs.

Figures......he'd prescribe the bird poison but not the LDN!! I've never experienced what he calls "euphoria". Although, if feeling close to normal again, having a little energy and not having the searing leg spasms qualifies as euphoria then, yeah, I've experienced it!

There's no $$ in LDN for anyone. The only ones who benefit are people like me.....and SallyC......and anyone else who's tried LDN and found blessed relief from it. I don't "feel like" I'm taking anything. I get no side effects like nausea, chills, fever, site reactions, etc. from it. And best of all it's not a shot!!

I'll never understand why all the doctors think we have to take potentially harmful drugs and suffer all the side effects when LDN is so easy. It's almost like they think we can't have a good thing without something bad added to the mix.

I'm just waiting for the day some Neurologist "discovers" LDN and acts like he's hit the bowl of gold at the end of the rainbow.

Sorry.....didn't mean to go off on a tangent here.....I've just found such a great thing and I wish everyone could give it a try.

yeahbut,
I'm sorry to hear that you're having to experience this. There is a political undertone to this that bugs me. I'll leave it at that.

I know a good bit about the CRAB's, nothing about LDN. LDN might be the way to go, sounds inexpensive and I know a lot of folks swear by it. You might want to consider antibiotics. I don't think it's as inexpensive as LDN, but two of the three parts are available as generics and it's not nearly as expensive as health insurance.
Ken

Antibiotics can cause constipation. Make sure they're right for you. For me, a short course causes problems I must deal with.

You know, nurse who introduced antibiotic therapy has died. Research anything before you try.