yeahbut,
I'm sorry to hear that you're having to experience this. There is a political undertone to this that bugs me. I'll leave it at that.

I know a good bit about the CRAB's, nothing about LDN. LDN might be the way to go, sounds inexpensive and I know a lot of folks swear by it. You might want to consider antibiotics. I don't think it's as inexpensive as LDN, but two of the three parts are available as generics and it's not nearly as expensive as health insurance.
Ken

Antibiotics can cause constipation. Make sure they're right for you. For me, a short course causes problems I must deal with.

You know, nurse who introduced antibiotic therapy has died. Research anything before you try.

Hi Kicker,
I've never heard of a case like that. Is there info posted about it? I'd be interested in reading it. I don't know that abx therapy was started by a nurse.
Ken

Or maybe it's AD therapy. But antibiotics do screw up my good bowel bacteria and constipate me but I do tend towards that. When kids were small with ear infections, their doc would prescribe a something pills to promote growth of "good" bowel bacteria. Think nurse was AD therapy. If I don't do it, loose info in my head. I just finished antibiotics for a UTI and am eating Activia right now (yogurt can help bacteria grow.(good)

You may be thinking of Prokarin(SP), Kicker. That's a histamine therapy, started by a nurse. Some found it helpful, most didn't and it wasn't covered by insurance.

So maybe that incident this past week wasn't carsick after all, huh?

Pick a therapy. Get the prescription from the neuro. I have a bunch of info on the programs that may help if you apply. The drug may be free or reduced greatly in price. Apply for assistance from the state too.
I get out tomorrow a.m. and I'm off until the 12th. I"ll get all the info together and email you the whole package.

Let's get this show on the road!

We like our little bubbling Yabbit and we want her to keep bubbling for as long as she can!!!

Yes indeed! And RW, you are a sweetie pie for helping our widdle lambchop!

Kicker, I have a pretty decent, though not perfectly complete history of abx therapy, but I can follow up with others I know to get closer to answers for you if you would like me to follow up. I'm all for helping provide information.

I think it took a while for Kim to adjust to the protocol, but she's handling it fine. She does take a fair amount of charcoal to help with secondary porphyria. She also takes probiotics every night at least 2 hours apart from her evening rifampin.

But, back to the original thought ... when we were having trouble getting the scripts I looked for ways to get the abx mail order and it worked out that a month of abx would cost about $200-$300 a month, sans insurance. Ken

Aw Yabbit..I'm so sorry you're feeling like poo. When my neuro wanted to put me on Tysabri, there was no way I could afford it, even with insurance. I made the rounds with the drug company, and they agreed to give it to me free. As for the infusion costs, most hospitals have programs for those of us who couldn't afford that, too.
Whatever you decide, I sure hope you're feeling better soon!