I'm sorry the testing was so hard on you, Deb.

I don't think I've ever had a neuro-psych testing. If I did, I wasn't aware of it. My neuro does the finger strength testing, the key-to-the-bottom-of-the-foot test (I cannot think of the proper name for that test), he makes me look at different colored pictures of numbers to see if I can decipher what number is highlighted. He makes me close my eyes and try to touch my nose. But that's just during a routine visit. I've never had a specific appointment for this kind of testing.

It would be nice to know how I'm cognitively doing. Some days I can really tell that I'm struggling. Others I feel relatively normal (whatever that is).

I think you and Trisha are the only two I've read about having specific neuro-psych testing. I'm wondering if I should have it done? It'll have to wait till I'm on Medicare, though.

Hi Kitty,

I know what you mean about feeling sharper some days than others. Of course, fatigue, pain and depression can all undermine cognitive function.

Kitty although not dxed... I had that neuropysch testing in 2006, I had told my pcp about my memory lapses.. or just struggles... she suggested and ordered it. The neuropysh listed attention and memory problems... and talked to me about it being part of a neurological nature... she asked if I have or testing for MS... I had laughed as all the side drs ask me that but the neuros say clear MRI no MS...

anyhow....

DEBBIE, glad the apt with the neuro went well... he sounds so understanding and helpful.. remember to listen to what he said about calling there if needed.

sorry the eval was tough, it was long and tough I understand the feeling..

hugssss, sarah

Ya know, with everything I've lost to MS, I refuse to lose my mind. I haven't been plagued by a lot of cog fog and refuse to be tested.......

Why? Because, whenever they test you for anything, they think they have to find something. If something is there, I don't wanna know about it..

Deb

Sally, Jim's never been tested either.

Deb

I am so happy for you that you have a good and very nice neurologist. They're hard to come by. Be sure to hang onto him.

I wish you all the best.

Sandy,
Jim's a sharp cookie...his brain's all there

I had to look up "neuropsych testing." I didn't know what it is. There's a long list of tests on Wikipedia.

I've never had a test because of MS. I've taken one of the tests listed several times - the Minnesota Multiphasic Personality Inventory test. It's a required test prior to being allowed to work at a nuclear power plant.

I know I'm gonna sound like a broken record, but the first year is the worst. It was for me. I'm coming up on my 22nd anniversary with MS.

Tom

I don't get it...why is the first year the worst? Because the sxs are trying so hard to break your spirit? Or do you all just get used to it and it gets easier mentally?
If I don't get relief from this spastic pain soon, I'm going to start pulling my teeth out...just to distract my mind from the leg pain. It's not bad until the night. Guess I'm overdoing it during the day, but what are you supposed to do, sit on your keister just in case you overdo it? No thank you...

I just don't get this stupid disease. I. Really. Don't. When I used to hear that MS patients were going to Dr. Kevorkian for "lasting" relief, I wondered, "Really? MS? Why would they want to die?"
Now, I understand a bit better...I won't pull the plug, but I understand.

My 1st test was done at the request of SSA for SSDI. According to them, some of the tests done at my neuro's office as part of a study were too old (only by a few monthslol). At that time, I did poorly on many of the tests. Over time, I noticed things improving and the neuro wanted to do a follow up testing to see where I am at right now. Otherwise, I don't think I ever would have had the testing done.

DebbieD - Hang in there! Please know we are all here to support you and help you through this.