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Old 09-06-2009, 01:40 PM #1
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Default I want a break :(

I want a break. I want a break of knowing I have MS each and every day. Each day is different for me from the grab bag of symptoms - so it makes sure I never am able to forget. Feeling like a "whack-a-mole" some days.

Also have some worsening of symptoms that need to be called into the neuro after the holiday. I feel like a hypochondriac sometimes for calling so often. Before this disease, I called a doctor for something other than a physical maybe once every few years.

But in a lot of pain, and despite doing all the "right" stuff to help with spacticity - it is getting worse and worse. I hate, hate complaining - so try my best to push on through everything. Just some days I want to crawl under a rock and stay there.

Need some cheese for this whine. Maybe some gouda

Thanks for the vent.
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Old 09-06-2009, 01:50 PM #2
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me too!

I am sick of this everyday is a new day full of challenges, and struggles, and watching dreams evaporate!

I was supposed to retire early and travel! now I am stuck at home, playing the merry-go-round of symptoms! I am sick of shots, and sick of having to tell my friends "sorry, too hot for me"

I just want a long weekend that I can zip out of bed, shower, and get on with my day. laugh, cry, BBQ, hang out, and not have to worry about how hot its going to be. Will the car ride be long to get there? Did I bring my meds? Will I have to lay down in the AC car while others play on the beach? Shesh! enough already.
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Old 09-06-2009, 02:12 PM #3
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Fin, did you ever watch "What About Bob?"

His therapist prescribes a vacation for him from his illness. And it worked!

Of course, if you've seen the movie, you know that Bob is a hypochrondriac. But wouldn't it be nice to get a well-deserved break from MS every so often? Or permanently? *sigh

Best wishes, Fin. Tell us what the doc says, k?
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Old 09-06-2009, 04:27 PM #4
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Fin I'm sorry you are having one of those "I wish I didn't have MS" days. They are the pits. I'm having one too--maybe because today is the second anniversary of my diagnosis, I was supposed to go the movies tonight with a friend and I feel too tired and the cognitive stuff was especially bad this week and that really scares me. I know what you mean about all of the doctors visits. I also only went every couple of years until the MS came along. Now I feel like I spend all my time in waiting rooms and worrying about health stuff. I think you definitely have the right to whine and have a pity party! Maybe it's cathartic and necessary. I am hoping you feel better soon.
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Old 09-06-2009, 06:28 PM #5
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(((((((((Fin)))))))))....I'm not nuts about Gouda, but I'll take a large caraff of the Wine, please.

The vacation thingy is a great idea....but, with diseases like MS, you can run, but you can't hide..

Feel Better Soon Please..
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Old 09-06-2009, 06:51 PM #6
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I hope you can find a few hours to relax and do/find something you can enjoy, even if it isn't MS free.
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