advertisement
Reply
 
Thread Tools Display Modes
Old 09-12-2009, 01:49 PM #1
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Jules A Jules A is offline
Senior Member
 
Join Date: Jan 2008
Posts: 1,424
15 yr Member
Default Ccsvi

Have I missed a thread about this? For some reason it is interesting to me, possibly because despite being a normal weight the veins in my legs are shot so I wouldn't be the slightest bit surprised if the ones in my head were also.

I'm not convinced that it will make major advances toward a cure but perhaps just put off some of our inevitable progression?

http://csvi-ms.net/en
__________________
He is your friend, your partner, your defender, your dog. You are his life, his love, his leader. He will be yours, faithful and true to the last beat of his heart. You owe it to him to be worthy of such devotion.
Anonymous
Jules A is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Natalie8 (09-13-2009)

advertisement
Old 09-12-2009, 04:16 PM #2
gonnamakeit gonnamakeit is offline
Member
 
Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
gonnamakeit gonnamakeit is offline
Member
 
Join Date: Oct 2006
Location: Arizona
Posts: 392
15 yr Member
Question

Quote:
Originally Posted by Jules A View Post
Have I missed a thread about this? For some reason it is interesting to me, possibly because despite being a normal weight the veins in my legs are shot so I wouldn't be the slightest bit surprised if the ones in my head were also.

I'm not convinced that it will make major advances toward a cure but perhaps just put off some of our inevitable progression?

http://csvi-ms.net/en
My doctor has done tests in my legs because of constant swelling and he found that the blood between my knees and ankles flows backwards. It could be related to the backward flow in the brain that MS patients supposedly have.

I prop up my legs to reduce swelling so maybe there is a way to prop up our heads and get the blood to flow correctly. Maybe we would have top hang upside down.
gonnamakeit is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jules A (09-13-2009)
Old 09-12-2009, 04:47 PM #3
Lady's Avatar
Lady Lady is offline
Senior Member
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Lady Lady is offline
Senior Member
Lady's Avatar
 
Join Date: Aug 2006
Location: East Coast USA
Posts: 1,174
15 yr Member
Default

Jewels,
They can do a Doppler Ultrasound of your legs, and your neck veins to look for reflux of blood. In the neck it is the vertebral veins, not the jugular veins per se, but the internal ones.

It is harder to look for this compromise in the neck, but an experienced doctor can read them, to make a dx of Ccsvi.

Image is not copyrighted anymore. It is old.



About vertebral veins.
http://en.wikipedia.org/wiki/Vertebral_veins

JMO, Right now Ccsvi is just Dr. Zamboni's hypothesis to connect this to MS. Even though he has done many tests on those with/without MS. I believe he has bought this to the annual medical conference this year. This is just all my opinion, btw.

It would be great to find a cause for MS and be able to treat it.
__________________
LADY

May happiness be at your door. May it knock early, stay late, and leave the gift of good health behind.


"Life is what it is". We can only focus on controlling those things we can control, we must let go of the things we can't.
Lady is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
gonnamakeit (09-12-2009), Jules A (09-13-2009)
Old 09-13-2009, 12:08 AM #4
Natalie8's Avatar
Natalie8 Natalie8 is offline
Member
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Natalie8 Natalie8 is offline
Member
Natalie8's Avatar
 
Join Date: Apr 2008
Posts: 900
15 yr Member
Default

Jules, if you are interested in learning more go to the www.thisisms.com website and look for the special forum on CCSVI. There is TONS of info with all the links to the scientific papers and research. They just had a conference on Sept. 8 in Bologna Italy which included doctors from the U. S. A woman whose husband has MS (and he had surgery to fix his veins) attended and took extremely detailed notes about what the presenters had to say. There is also an open facebook page now with the notes and links etc. Just type in CCSVI multiple sclerosis facebook in google. Fascinating stuff and all the doctors who attended the conference are extremely excited about this new paradigm. They believe the problem with varicose veins is the same process going on in the neck/head.
__________________
On Tysabri and love it.
.
Natalie8 is offline   Reply With QuoteReply With Quote
"Thanks for this!" says:
Jules A (09-13-2009)
Reply


Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

BB code is On
Smilies are On
[IMG] code is On
HTML code is Off



All times are GMT -5. The time now is 12:33 PM.

Powered by vBulletin • Copyright ©2000 - 2024, Jelsoft Enterprises Ltd.

vBulletin Optimisation provided by vB Optimise v2.7.1 (Lite) - vBulletin Mods & Addons Copyright © 2024 DragonByte Technologies Ltd.
 

NeuroTalk Forums

Helping support those with neurological and related conditions.

 

The material on this site is for informational purposes only,
and is not a substitute for medical advice, diagnosis or treatment
provided by a qualified health care provider.


Always consult your doctor before trying anything you read here.